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After years of living a limited life with chronic illness, Kacie began to see a new chapter unfold. Tune in to hear how her story turned to hope and healing!

Healing Fibromyalgia & Lyme with Kacie Fleming

Chronic illness has this way of sneaking up on you, doesn’t it? Most of us could admit that the signs were there. Maybe they’ve even been there awhile.

But we keep covering the flashing lights or silencing the alarms.

We push through. We get things done in spite of the pain. Or we tell ourselves “this will pass.”

Until we can’t.

Until the symptoms become just enough to start calling some of the shots. Instead of pushing through, we find ourselves weighing out the costs of simple actions. Things we used to do without giving them a second thought.

Kacie’s story is all to relatable. And it begins with an all-too-familiar thought of “something’s just not right.”

From one diagnosis to another, as her list grew and pills were prescribed, she found herself in another world.

The land of chronic illness. A place where resting after a shower, canceling plans, and eating a limited diet was the new norm.

But her story didn’t end there. She pursued other opinions, holistic treatment, and opened her mind to a completely different approach to healing.

Her story is now one that is full of healing and hope for both herself and others – and she’s sharing her journey of how it’s all been unfolding today on the podcast!

She and I have both embarked on the DNRS program, which we’ll also be talking about during our chat. You won’t want to miss it if you’ve been considering learning more about neuroplasticity!

Listen in….

To listen to today’s episode, simply hit play below or subscribe to the show on iTunes, Stitcher, & Google Play!

 

Connect with Kacie!

Visit her shops: Katya Valera Jewelry | Streetlights at Midnight

Connect on social media: Facebook | Instagram

Is it possible to heal chronic illness naturally? After receiving multiple diagnoses that could have meant living a life defined by illness, Kacie is sharing her story of how hope and healing have been unfolding in her life through treatments often overlooked (or unheard of). Click to listen!Healing chronic illness naturally with Kacie Fleming @kacie_kvFrom diagnoses to hope: Kacie's story of finding healing through methods most doctors might ignore may bring renewed hope to your own story. Click to listen in!

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Have you ever tried Reiki before? I recently had my first session and I'm talking with my Reiki healer today on the podcast! Tune in to hear Melani Schweder's healing story and how Reiki plays a role in her overall wellness.

Reiki: Pursuing Wellness of Body, Mind & Spirit

When you think of “wellness”, what first comes to mind?

Is it the food you eat? A practice of self care? Taking vitamins?

I know there was a time when wellness to me simply meant feeling healthy. I didn’t think much about what I ate, how I intentionally cared for my body, or the type of exercise I did. And I certainly didn’t think much about the role my emotional or spiritual health played into my overall wellness.

Well, let’s get one thing right: much has changed for me in this department.

I fully believe that the well being of my emotions, spirit, mind and body ALL play their part in my wellness. In helping me be the best version of me there is.

And on my personal exploration and discovery of what wellness truly means to me, I’ve opened my eyes and heart to a variety or healing modalities. From drastic diet changes that honor my specific needs to making intentional time for rest. I’ve experimented with exercise appropriate for my body and neuroplasticity practices for supporting brain health.

But more recently, I had my very first experience with Reiki energy healing. Reiki is something I had heard about and considered exploring for some time but kept putting it off. It’s a Japanese healing technique that was developed in in the 1920s. It’s a natural approach to healing on a spiritual, emotional and physical level and the more I read about it the more fascinated I became.

So I scheduled my first appointment for a distance Reiki session with Melani Schweder and had such a great first experience I scheduled a second. Today she’s joining me on the podcast to talk about her own healing journey, how Reiki has played a role in her wellness and how we can pursue wellness of body, mind & spirit.

To tune in, click below or visit the podcast on iTunes, Stitcher, or Google Play!

 

About Melani:

Melani Schweder is a Certified Health Coach, Reiki Master/Teacher, and writer based in Denver, Colorado. She calls herself a chronic wellness advocate because she believes that even those with complex illnesses can live a life of joy and purpose. Her own healing adventures in Lyme Disease and Chronic Fatigue Syndrome helped her realize the importance of nutrition, mindfulness, and self-care, and she uses her own experiences to help others unlock their own innate healing potential. When she’s not working with clients, she’s usually playing with her dog River, whipping up something in the kitchen, or spending too much time on Instagram. You can see what she’s been up to at: www.abrighterwild.com

Connect with Melani on Twitter | Facebook | Instagram

 

Have you ever tried (or want to try) Reiki? Let me know in the comments!

eiki Healing- Pursuing wellness of body mind & spirit.Melani Schweder: Pusuing Wellness of the body, mind & spirit through Reiki energy healing. Click to tune in to The Wellness Crossing podcast and hear this episode!

Have you ever tried Reiki? In this podcast episode I'm chatting with Melani Schweder, a Reiki Master/Teacher who has seen the tangible benefits of Reiki in her own healing journey from Lyme disease. Click to listen in!

Melani is Reiki Master/Teacher and Primal Health coach specializing in helping people with complex illnesses. With her own personal experience of healing from Lyme disease, Melani talks about the unique approach she offers through her own experience and sensitivity to the complex nature of healing from chronic illness. Click to listen in on this podcast episode!

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In a world where the ill often are overlooked or feel invisible, it's so important that we learn to honor our true self. Kat & I are chatting on the podcast about what that looks like for us as we transition from illness to wellness. Click to listen in!

Honoring our True Self & Transitioning from Illness to Wellness

In these last few months of seeing my health begin to improve, I’ve found myself in unfamiliar territory. Much like there’s no road map for how to navigate the life of chronic illness, there’s most definitely not one for how to transition from illness to wellness.

So I’m often testing boundaries as I try and figure out how far this healing body can really take me. And while not every attempt has gone well, I am grateful for the courage it takes to both reach outside of my comfort zone and learn to rest.

But I’m also struggling with all kinds of emotions. Over how good it feels to enjoy more of life outside the home. And the tensions I can feel between embracing newfound healing and hurting for those I love deeply, still waiting for their own healing strides.

I’ve wrestled with the questions of “what next”. What to do with this blog, my creative passion, and my desire to help others on their healing journey. And now that wellness is entering the picture more and more, the more I wonder what the best next thing is.

For now, I’m giving myself plenty of room to process, explore, dream and create. While also making sure I emphasize healing every step of the way. Today’s podcast episode is of me doing that with one of the sweetest souls, Kat Woods.

Kat and I connected on Instagram in the last couple of years and have been healing from the same health challenge (#lyme). This was the first time we’ve spoken with each other off the screen and squares of Insta and we both agreed it was JUST the conversation we both needed.

Kat is a trained chef, an indie-cartoonist, and an all-around vibrant being. She began the blog, Hope Heal Cook, and has been inspiring and encouraging others with her beautiful nourishing meals. The way she has labored in love for her body’s nutrition is absolutely amazing. Just check out her feed and you’ll see what I mean. I’ve learned more about produce from her than anywhere else! Particularly how many fruits and veggies I didn’t know existed. 😉

Pull up a chair (or headphones) as we chat all about our individual journeys through healing. We’re unpacking how we’re learning to transition into a new “normal” and how Kat supports her body through diet.

Listen below or tune in to the podcast on iTunes, Stitcher, & Google Play!

 

Show Notes:

Be sure to check out Kat’s book “The AIP Instant Pot Cookbook“!

Find Kat on her blog, Instagram, Facebook and Twitter.

Follow along and connect through the Hope Heal Collective Instagram feed!

 

How to support and honor your true self? Leave a note in the comments! I love hearing & learning from you!

 

Catch up on all the episodes of The Wellness Crossing Podcast by clicking here. 🙂

 

Kat Woods on the Wellness Crossing: Honoring our True Self and the unknown territory of transitioning from illness to wellness. Click to listen!

What does it look like to honor our true self while healing? Join Kat Woods and I on the podcast as we chat all about transitioning into wellness, how we are embracing our full selves and more! Click to tune in :)There's not a road map for figuring out how to transition back into wellness when you've been healing from a chronic illness. Today on The Wellness Crossing Podcast Kat Woods and I are chatting about our recent journeys of entering back into a new "norm" and what it looks like to honor our true selves in the process. Click to listen to the episode!

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Often we view healing as a destination, something we wait to arrive at. But healing is more of a process, and one that I've been working hard on as I've been following the DNRS program. Click to read my 5-month update!

Healing is a Process: My 5-month DNRS Update

“So, are you, basically…all better?”

I sat quietly on the sofa, trying to figure out how to respond to the person who asked me. Have I been improving? Yes. Am I fully healed? No.

But I struggled, more so because, whether or not it’s intended, the question invites closure. Something we, as humans, really, really like. Don’t we?

To finally get that degree under our belt. Or discover a positive on the 11th pregnancy test. We want there to be an “end” to the waiting, a destination to arrive at. Because then, things will be better.

Yet…healing, in the context I’ve been learning to embrace it, has taught me there’s so much more depth in a journey rather than a destination.

Because for me, waiting to arrive at “fully well again” was a hope that faded fast. I found myself sitting in a place of acceptance, wanting to just be okay with a reality that sick was a new norm.

It gave me an odd sort of comfort. That I didn’t have to “fight”, and I could just “be”.

But then a few months ago a new treatment crossed my path that gave birth to a new experience in the realm of healing. It gave me a reason for letting go of the concept of “fighting” and empowered me to redefine what it looked like to actively heal.

And it gave me hope.

It’s been awhile since I’ve given any sort of update since starting the Dynamic Neural Retraining System, so I thought I’d do that today. Because while I’m still healing, I believe in celebrating the wins. Big or small. Of which I’ve experienced both!

My 5-month Update

In my last update, I listed off some of the improvements I’d seen in energy, pain and inflammation levels, fatigue, and dizziness. All of those improvements have remained or improved, but my walking distance has increased substantially!

As my legs have continued to grow stronger, I’ve enjoyed long (and often faster-paced) walks with my hubs. Which has been such a great thing! I walk to coffee shops or the farmer’s market without thinking twice. And several months ago that wouldn’t have been possible.

Summer has been another test for us to observe how well I’ve actually improved. And while I’m still improving in some areas, my overall experience in the summer heat is definitely better!

The temps here in southern Oregon have been hot at the peaks of each day, with a bit cooler evenings and mornings. But my body has been handling it so much better than it did the last few years.

Where before I would have felt like I’d pass out at any moment these last few summers, this year I am tolerating it much better. Instead of staying indoors, I can be out in the heat most days, soak up the sun’s rays, and even walk in moderate temperatures without fearing I’ll faint.

But I think my biggest accomplishment is that after 3 years of not driving I was able to get behind the wheel again! And starting back up with a manual again, at that, I’ll have you know. (The hubs said I picked it up quickly so I’m gonna throw in a not-so-humble-brag right here.) 😉

With driving comes another beautiful thing: more independence. And anyone who’s lived housebound for any stretch of time understands what a glorious gift that is!

Some of my other notable improvements include being able to travel several hour distances and sit in restaurants without earplugs (heck, just be around people without earplugs). It’s been so helpful to feel more comfortable in my skin with so many less symptoms grabbing my attention.

I feel happier, lighter, and more filled with hope than I had been in long, long time. Which is notable to me because I swear hope had become a foreign feeling to me. It felt like I couldn’t grab onto it fully no matter how hard I tried. (So I just might need to write a post about that and the connection I see with having an impaired limbic system…)

As grateful as I am for this healing, none of it came to me easily.

It didn’t just “happen” one day or sneak up on me. And I don’t believe it’s a miracle.

Why?

Because I’ve been been working hard, healing my lil’ ass off.

From taking care of my body with food, self-care, rest, and supplements over the last few years to the commitment I’ve made to retraining the neural pathways in my brain every day, I’ve worked for this. And the efforts are paying off.

Healing is like that for any of us, isn’t it? It takes time, effort, commitment. Belief it can happen and the support to help us pursue it.

True healing isn’t just something that appears all of a sudden. It’s not a one-and-done pursuit. For me, I believe my physical healing will reach a point where it’s no longer my main focus.

But I’ll forever be learning to pursue healing of body, mind and soul.

So whether you’re reading this because you were curious about DNRS or you wanted to fuel your own fire of hope that improvement is possible, or maybe you don’t even know why you clicked on this post in the first place…

Whatever the reason you’re here, I just want to leave you with this:  

I’m proud of you. I acknowledge your efforts and how hard you’re working on healing. And I believe things can get better. <3

Wanna know more about the DNRS program? You can check it out here. (<<<—aff link)

Over the past few months I've seen layers of healing begin to unfold as I've been following the DNRS program. I'm diving into just what the progress has looked like for me and why I'm releasing the idea of "fighting" my illness and choosing to lean in to the journey that is healing.

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Shop the Lyme gift guide for apparel & accessories that spread hope & awareness! Click for more.

A Lyme Support & Awareness Gift Guide

Today I am beyond excited to share the creative work of some of the most fierce and lovely ladies I’ve been lucky enough to “meet” in the Lyme community. Their stories, talents, and vision all funnel toward the same positive message. And it is one of hope, courage, and compassion.

The wonder of the internet is that though I’ve never sat down and had coffee with any of these ladies, they’ve each had an impact on me. As they’ve shared their healing journeys and creative work, their strength and light have inspired and challenged me in some of the moments I needed it most. And I’m thrilled to share some love for them and their amazing talent here in this Lyme gift guide!

I’ve asked each of them to share a look at what led them to create their pieces, so enjoy hearing from the creators themselves!

Lauren Lovejoy
Lyme Warrior

Lyme Warrior Lyme Won't Sink Me V Neck and Warrior Bracelet

Lyme Warrior is a group of volunteers raising funds for Lyme research. With Lyme Disease being widely disregarded by the medical field, it is up to us to find a cure. It is one thing to fight for what’s right, but it takes amazing people to fight for what’s right while fighting Lyme.

You can find the Lyme Warrior shop here!

Melissa Cox
Lyme Don’t Kill My Vibe

Lyme Don't Kill My Vibe Unisex Tee and Flowy Yoga Tank

As an extension of my blog, Lipstick Warpaint, I created #LymeDontKillMyVibe, a hashtag primarily used on Instagram to spread positivity and awareness surrounding Lyme and associated conditions. The original design + slogan was created in 2014 almost 1 year after I was diagnosed with Lyme. At that time, there were very limited Lyme awareness apparel options that felt truly empowering.

I’m a huge hip hop fan and the slogan just came to me one day while listening to Kendrick Lamar’s “B*tch Don’t Kill My Vibe” back in 2013. It became a near-daily mantra, and one day I decided THIS needs to be a thing. I now have a second edition design which was created in December 2016 with the help of my Lyme fightin’ entrepreneur friend Elise Graham. What I love most about Lyme Don’t Kill My Vibe is it encompasses both strength and community. There are over 25,000 posts on Instagram with the hashtag alone, and it feels like such a positive step toward reclaiming what healing means.

You can purchase them (with new items being added this summer!) at Lipstickwarpaint.org/shop or find me on Etsy

Kerissa B.
Tx Stitch

Lyme Disease Sucks Pin by TX Stitch

I never really felt like I was a creative person before Lyme. There’s something about being forced to be in bed that made my hands feel idle. I started cross stitching and created an Etsy shop and slowly expanded to have exactly 1 patch and 1 pin. I wanted to create something Lyme related that was simple but really told people that it’s not a great thing to have. Thus, the pin was born.

Kacie Fleming
Katya Valera Jewelry

Katya Valera Jewelry Rising Above Lyme Bar Necklace & Frame Necklace Collection

I’d been a fan of Kami’s RAL (Rising Above Lyme) phrase and shirt line since she first released the shirts a while back. Being the spontaneous creative that I am, the idea of collaborating with her for some RAL jewelry flashed through my brain one day, and I jumped right in and contacted her with my idea. Thankfully she loved it, and thus began a good couple months of planning and work!

Originally I envisioned frame necklaces that feature text images designed by Kami, and then I developed the idea for a piece that visually represents the phrase—the bar necklace. We then added a minimalist, very lime wedge-style piece, and the collection was complete. I’m so grateful to have gotten to work with Kami on this collection and to be able to help inspire and encourage others who are on a similar journey.

Shop Katya Valera here!

Chloe O’Neill
More Than Lyme

More Than Lyme Keep on Keepin' On Tee and Canvas Tote

No matter where you are right now, know that you are enough. No matter how scared you feel, know that you are not alone. No matter how often you feel like giving up, remember that you are strong enough to have made it this far, so why not choose to keep on keepin’ on?

Why not take all the adventures you’ve gone on, mishaps you’ve had, and pain you endured, and use them to create a full and happy life for yourself? A life where no matter how hard things have been, or are going to be, you know that tomorrow will be worth it. You know that you are worth it.

You know that you are enough.

Regardless of where you’re at, what you’re doing, or how you feel, remember that you’re more than your doubts, your fears, and illness that hides beneath your skin.

Click to shop MTL! A code that people can use for 15% off is SHAREYOURSTORY. 

Kami Lingren
Rising Above Lyme

Rising Above Lyme Tee and Graceful & Fierce Tank from Living Grace Shop. Click to shop!

Hey, that’s me! 😉 Last year I had the phrase “Rising Above Lyme” on repeat in the back of my mind. Partly because I think it’s so easy to find ourselves consumed by our health challenges. And understandably so. But I didn’t want my story to be solely defined as “sick”. So I created a shirt that would remind me that my life’s purpose and worth are not defined by my circumstances. Rather, by my conscious effort to engage my life in spite of them. And I wanted the message to inspire and validate others who were fiercely healing as well!

This year I added the Graceful and Fierce design, which I feel resonates so deeply with the essence I strive for. To fiercely love, heal, advocate and show compassion, but to also be gentle with ourselves and others as we live, learn and heal. And what a beautiful thing it is to embrace both in our lives.

You can find the entire Living Grace collection hereAnd use code RISING this month for 15% off your order!

Have you been dreaming of creating something to help raise awareness and hope? I hope this Lyme gift guide inspires you to embrace that dream and make it a reality!

Lyme Creatives Gift Guide for spreading Lyme disease awareness and support! Click to shop items created BY women healing from Lyme FOR others also healing!
Lyme Awareness Wear: Gifts and Apparel for those healing from Lyme Disease. Click to check out all of these amazing creatives!

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After spending years chronically ill I began researching the DNRS program as a natural alternative to healing. I've seen great results and am sharing 3 important questions I've been asked - and answering them! Want to know more? Click here to learn more about how the treatment works!

3 Things You Should Know About DNRS

This is not a sponsored post. These opinions are entirely my own and are in no way endorsed by the Dynamic Neural Retraining System.

If you read my post last week, you know that over the course of the last six weeks I’ve been adding in a brand new treatment. And it’s a program that’s, well…outside of the box.

It doesn’t come in the form of capsules. Or an injection. And it doesn’t involve a device, for that matter.

Because this treatment, interestingly enough, can’t actually be seen.

Sure, the information and instructions for DNRS (Dynamic Neural Retraining System) are delivered in the form of a DVD series and a personal workbook. So there’s something tangible you have in hand as you’re learning. But implementing the program involves working on/with your brain.

Which means it’s a lot of internal work.

The techniques presented in this program are based on research surrounding neuroplasticity. Which, in short, refers to the brain’s unique ability to change itself. Wild, right?

So today I thought I’d answer some of the questions that I’ve been asked the most since starting DNRS:

  1. What is DNRS?
  2. How would retraining the brain help current health challenges?
  3. Is it worth the $250+ investment?

These are all questions I’ve asked before starting the program so you’re not alone! Information on healing through neuroplasticity is still relatively new to me, but I’ve been seeing profound shifts begin since starting DNRS.

So how about we just tackle these one by one?

What the heck is DNRS?

As I mentioned before, the program arrives at your door with a set of DVDs and a personal workbook. You’re encouraged to complete the program (which consists of 14+ hours of material) in 4 days in order to get the most benefit, but I’ll be honest: it took me a bit longer. But I gave myself some grace and, as I’ve shared, am still seeing positive shifts in my health.

In a nutshell, the DNRS program aims to first educate you in the science behind neuroplasticity and then equip you with both the tools and techniques to help you repair your limbic system.

I wasn’t familiar with the limbic system prior to this treatment program. So in case you’re like me and your thoughts are starting to drift toward what you’ll be eating for lunch, let’s quickly cover the basics.

The limbic system consists of several parts of the brain including the hypothalamus, hippocampus, amygdala and cingulate cortex. Together, these structures make up the “feeling and reacting” functions of the brain.

Now if the limbic system is impaired due to injury or trauma (whether that’s an infection, chemical exposure, mold toxicity, emotional or physical trauma, etc) it becomes hypersensitive. And in this hypersensitive state it will overreact to even the smallest stimuli that would otherwise be passed over as harmless.

Since our limbic system works intimately with our endocrine, autonomic and immune systems, it inappropriately activates those systems which can end up in a “party” of symptoms we never invited.

The DNRS program gives you a system to implement that will help rewire the limbic system so that it’s once again functioning properly. The treatment you implement includes both daily brain exercises you work on throughout each day and one hour of devoted time of “practice”. Practice each day involves a combination of mild movement, vocal exercises, and mindfulness techniques – all to help restructure the pathways in the brain.

I obviously can’t share exactly what the practice outlines for you to do each day, but something that may be helpful to talk about is the reality that I was very limited before starting this. And even I was able to implement these practices in the beginning. Sometimes I just had to do it in an abbreviated way, such as lying down or sitting during a portion of the daily one-hour of practice.

Want to learn more about the Dynamic Neural Retraining System? After years of treatments, doctors, and way too many years spent home-bound this method is helping me HEAL! Click to read more as I'm responding to my 3 most asked questions about the program.

 

How would retraining my brain help my current health challenges?

Great question! And one I asked over and over again before purchasing the program.

One of my first thoughts upon looking further into the program was that it seemed like everyone was “drinking the Kool-Aid.” But heck, I was desperate. And if  the Kool-Aid actually worked, I couldn’t care less about the modality. I just wanted to be better!

And while I am getting better, this most definitely is not brain washing. (Or sugary Kool-Aid for anyone wondering). There was an important distinction I knew I needed to make early on in the program. As I learned more about the brain and neuroplasticity it became clear I had to treat my brain just like I was treating my body.

My magnesium has been regularly low for years now, which is why my naturopath has been supporting my body’s diet with magnesium supplements. My blood pressure has also been regularly low, so I frequently drank Himalayan salt water to help keep it from dipping too far.

So for me, it was helpful to view my efforts in neuroplasticity retraining as working with the organ of the brain.

As in: utilizing my mind to retrain my brain’s pathways. And while a huge part of this program is working with your thoughts, it’s more specifically working with the thoughts/messages your brain is inappropriately sending.

The aim is to redirect the neurons that are firing incorrectly (i.e. sending symptom and pain signals) so that over time they are no longer wired with the same old pathways. The outcome is rewiring the brain with new, healing pathways so the limbic system can be properly functioning once again. Which results in lessening symptoms!

I’ve heard all sorts of “just think positive” mantras and over these past years of health struggles they’ve felt like a big ball of blame. The message received was “you’re not positive enough, therefore it’s your fault you aren’t getting better.” And I don’t buy that one bit.

Any mindset shifts I’ve experienced (or been able to set in motion) in this program have been a direct result of experiencing tangible healing. Meaning: literally feeling a difference in my brain and body. It’s been like a fog has been slowly lifting. A fog I simply did not invite or entertain. Because believe me, I wanted all of the symptoms and discomfort GONE. 

This program isn’t about just thinking positive, but rather learning how to communicate with your brain to help it reach wholeness. And what I’m finding with each passing week is that I do feel lighter. Even happier, but genuinely so. And it coincides with the healing that’s begun in my brain and body.

How did I decide it was worth the $250+ investment?

First off, I can tell you one thing that didn’t help me decide: a guarantee I would get better. Because there wasn’t one. I knew that just like every other treatment I tried, no one could tell me this would 100% work for me.

But the following things really did help.

    1. A money-back guarantee. This was a first for me. We have shoveled out tens of thousands of dollars, much of which we fundraised, to pay for treatments over the years. Never once have we seen this. If you commit to the program for the full 6 months and don’t see significant improvement, they’ll refund you. That’s quite a statement of belief in their program!
    2. It’s really not that expensive. I probably don’t need to say more after what I just said about “tens of thousands”, right? But in case you need a further statement: $250 doesn’t begin to touch how much my supplements cost us right now each month. If getting me better means being able to go off of those, it’s well worth it.
    3. The research speaks for itself. The more I’ve studied about neuroplasticity through the program (and now after), it JUST MAKES SENSE. Variations of the techniques in this program have been proven effective in so many others. Want to be really amazed? Watch this TED talk given by Dr. Jill Bolte Taylor who suffered a stroke and talks about her experience and neuroplastic healing.

The following contains affiliate links which means that if you purchase something through one of these links I may receive a commission – at no extra cost to you. As a reminder, I only promote things I have personally tried or believe are beneficial. Any commissions earned help me keep this blog running. So, thanks! 🙂

You don’t have to take my word for it. Learn more yourself!

Since starting the program I’ve had a craving for learning more about the brain, specifically neuroplasticity. So I have a running list of the books I’d like to read and recently checked out my first one from our local library by Dr. Norman Doidge, called The Brain’s Way of Healing. I’ve just started and already it’s a fascinating and helpful read! I also plan to read his first neuroplasticity book, The Brain that Changes Itself.

Since watching the TED talk video I mentioned earlier I’ve been eyeing Jill Bolte Taylor’s book, My Stroke of Insight, for a future read also. Because after watching her tell her story I just have to know more!

Finally, of course, the Dynamic Neural Retraining System’s website contains more information about both the program and understanding the science behind their approach. And it’s a great way to check it out more before deciding if it makes sense to purchase the program for yourself. Let me know if you do! I’d love to connect.

Have you read any books on Neuroplasticity? Have you done the DNRS program or something similar? I’d love to hear your thoughts!

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How the DNRS Program is Helping Me Heal

If you’ve been following me here for awhile, you know that here in this blog-space I share the grit and guts of what I’ve experienced in the realm of the sick life. But if you’d like to catch up on my story to understand how powerful the news I’m about to share is feel free to check out this post. It’ll give you a look at what used to be an average day-in-the-life for me. Don’t worry, I’ll wait right here til you’re done…

Ready? Okay.

So a little over a year ago I met a doctor through a friend and my goodness has she been a godsend to me. Quite frankly, I believe she is one of two doctors that has helped keep me alive. Well, them and a nurse who quite literally gave me back my life in 2015.

Through her care I’ve seen some beginning signs of improvement as well as experiencing a much lower # of ER visits (1). But I’ve still been largely home bound. Weak. Frail. Experiencing way too many symptoms to be normal. She was feeling hopeful that by the year’s end I’d see some marked change. And I tried my best to hope with her.

But then I was sent a message from an Instagram friend that told me I needed to check out the DNRS (Dynamic Neural Retraining System) program. She said it had completely changed her life and since our stories were so similar I thought I should at least look into it.

So I clicked over to the website and began to read. My first response was honestly, an eye roll. “‘Retrain the brain’? Do they think this is all in my head? This sounds like another load of positivity B.S. So…I’m outta here.” I replied to the friend with a thanks, but this just isn’t for me. And I thought that was it.

But it KEPT. POPPING. UP.

A few weeks after I said ‘no thanks’ it popped up again. Then a couple days later a friend messaged me about it, asking if I’d heard of it. Call it what you will: a sign from the universe, or God, or my own body/brain trying to send me a message, but I just couldn’t get away from it.

So I looked at the website again. I watched tons of the testimonial videos as well as a presentation by the creator of the program, Annie Hopper. Her story, though different than my own, also held so many similarities. And she confirmed what I knew to be true: this illness is NOT all in our heads. So I softened.

I felt like her heart was compassionate toward others who had gone through what she had. And her incredible story was this: I learned to retrain my brain and I healed myself.

That’s quite a bold statement, no? So I looked at the price of the program and I talked it over with Trevin. A couple weeks later I had the DVD program in hand. It came right after I’d finished running my very first workshop with some of the readers here at Living Grace. The timing felt perfect.

Have you heard of the DNRS program based on the research of neuroplasticity? It's a fascinating program that is helping me heal from years of chronic illness. To read more of my one month update, click here!

I entered the DNRS program with a lot of skepticism.

I just feel like you should know that. It definitely wasn’t as if I bought into this deal right off the bat. But there were some aspects of the research I found online surrounding the brain’s ability to change itself (neuroplasticity) that I couldn’t ignore. And seeing how it had helped so many others similar to me gave me enough hope to give it a shot.

The program is designed to help you rewire your limbic system so that it builds more functional neural pathways. As I learned more about the brain and limbic system in this program, the cause and effect of why I continued to grow sicker or only experience small amounts of relief started to make more sense.

In the DVDs Annie explains that when the brain experiences various forms of trauma, whether that’s viral, physical, emotional or otherwise,  a maladapted stress response can be triggered. Essentially that means that our brain’s instincts to protect us get kicked into overdrive, leading our limbic system into a constant state of fight or flight mode.

And how on earth could I get better if my brain constantly thinks it’s under attack?!

This video documentary on neuroplasticity is quite fascinating if you’re interested in understanding more. (Just feel free to ignore the creepy music.) Variations of these concepts have been proven effective in the treatment of physical injuries, such as stroke patients or those who have suffered brain damage. And it’s also helped those who have suffered psychological PTSD or have OCD. 

Next week I’ll be unpacking a bit more about neuroplasticity and the design of the program, but until then you can also check out the website to watch some tutorials and read up on the science behind it. (<—that’s my affiliate link, which means I may earn a small commission if you click on it and purchase the program. As a reminder, I only share things I’ve either tried or believe in the value of. In this case: I’ve tried it and it’s helping me heal!)

My one-month improvements:

I’ve been on the program for just 4 weeks now and the changes in that short period of time have been quite amazing. Especially when Trev and I compare it to the life I’ve been living the last few years. And while I have more healing to work towards, I’m truly grateful for these beginning signs of healing.

As a pre-cursor to my improvements here’s a list of most of my diagnoses: Lyme, Bartonella, Babesia, Mold Illness, Heavy Metal Toxicity, Fibromyalgia, Chronic Fatigue Syndrome, MTHFR genetic mutation and POTS).

  • I’ve gone from barely being able to walk a couple blocks on a very good day to walking almost daily the last week+.
  • My fatigue levels used to be at an average of 7-9 every day (on a scale of 10 being “I can’t move”) and now my levels are averaging below 5 consistently.
  • The inflammation and joint pain I’ve consistently lived with hasn’t been this low in over 4 years.
  • My strength is slowly growing and my litmus test is being able to do the dishes almost daily. They used to sit an average or 2 days before I could get through another round.
  • Dizziness used to be one of my most debilitating symptoms. Now? It’s at an all time low also.

The healing process continues…

There continue to be new things that pop up and surprise me as I continue to commit myself to the program and work toward further healing. And in my commitment to the program, this post will be one of my last to mention diagnoses or symptoms for awhile. It’s a necessary part of retraining my brain in this critical stage of early healing.

Guys, I’m not going to sugar coat it for you: this treatment is not easy. But then again none of what I’d done for healing has been. Seeing improvements and feeling genuine hope is most certainly worth sticking with it.

With all that said, I feel so happy to share that I believe I’m in the process of healing. And while I believe in God, I’m going to keep my feelings on this experience ultra-real for you: this is not something that I’ve seen sprinkled down magically into my life. 

I’ve fought for this. For years.

I’ve committed myself to countless supportive supplements, doctor’s appointments, injections, blood draws, detox, nourishing myself, gripping onto my pebbles of hope, so-much-waiting and now I continue to reach for healing with this program. (And I continue to maintain my supplement protocol under my current doctor’s care while on the program).

So I’ll leave you with this one-month update and hope that this program may also help some of you sweet struggling ones on your own healing path. To reclaim your own health. To heal your brain’s limbic system. And begin to see yourself able to dream again… of living a healthy life, of travel, and of pursuing the things you’ve been waiting for.

Have you heard of DNRS before? Or tried it? Have questions you want me to answer in another post? Drop your thoughts below in the comments! I’d love to hear from you. 🙂

As a heads up: I’ll be largely taking a break from my Facebook page indefinitely, so if you want to stay in touch be sure to sign up for my email list. Or connect with me on Instagram!

 

*Disclosure: This post contains affiliate links. That means that if you purchase through one of these links, I may receive a small commission (at no extra cost to you). Thanks for supporting this blog and my health!

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Do you feel 'stuck' as someone who lives with chronic illness? Do you feel like there's no way to change your current situation? Today Kerry Heckman is sharing her thoughts and experience on making positive changes that have helped her heal. Click here to read the full post!

How to Make Changes in Order to Heal

Do you feel 'stuck' with pushing through the pain of chronic illness? Never feeling like you'll ever get better? Kerry Heckman is sharing her story of leaving her full time job and the healing that it's brought her. Click here to read her full story!

This post contains affiliate links, which means if you purchase through one of these links I may receive a small commission at no extra cost to you. This helps me keep this blog running so thank you!

Today’s guest post is written by Kerry J Heckman of Body Mind Lyme.

In her book Mind Over Medicine, author and doctor Lissa Rankin discusses how she changed her patient interview process. She used to ask patients about symptoms. Then, she started asking patients, “What do you need in order to heal?” The answers surprised her and changed the way she practiced medicine. People started saying things like, “I need to quit my job,” “I need to leave my relationship,” etc.

Often times there is a voice in the back of our mind telling us we need to change something. For me that voice started many years before my diagnosis.

It told me I needed to leave my job. I was working as a school social worker with mountains of work and heavy responsibility. I ignored it and kept pushing myself and pushing myself, ultimately making myself sick.

The Lyme disease, which I’d most likely had since childhood, came out of remission. Then, I no longer had a choice. It was either me or the job. There is no doubt in my mind that if I had stayed at my job I would’ve ended up on disability. My body just couldn’t handle the level of commitment that was expected.

Making changes…

I know the response many people have when they hear this; they say, “I can’t quit my job.” Lyme disease treatment is outrageously expensive and most insurance companies won’t reimburse doctors for treatment, so we are stuck paying out of pocket. I completely understand that leaving a job is not possible for many Lyme patients, many of whom live on the brink of poverty.

If you can’t leave your job or make the other major changes you need to heal right now, it’s about finding small ways in which you can work toward the changes. The voice inside my head started telling me I need to leave my job five years before I actually made it happen.

Taking small steps is okay.

You don’t have to quit your job, move across the country, or leave your unhealthy relationship today, but it may help to take some time to think about what it is that you really need in order to heal. Start thinking about small steps you can take to move toward that place.

Can you make a commitment to updating your resume, or make an appointment for couples counseling? Can you make a Pinterest board of the place you want to live and research home prices in the area? At the very least can you start a 5 minute a day meditation practice in order to start listening to yourself and asking the question, what do I need heal?

One of the first small changes I needed to make was to change my belief system. I needed to go from looking at my illness as a terrible thing that was thrust upon me, to a message. My illness was here to tell me something and I could either listen and make changes, or I could fight against it live a place of anger postponing the healing process. I started to get quiet and really listen.

“Find a new forest.”

Sometimes we think we are completely stuck in our circumstances, and that we are out of options. My personal belief system is that is never true. There is always a teeny tiny adjustment we can make (even if it is just in our attitude), which can tip the scales in our favor. A wise person once told me that I needed to get out of the forest I was in, because all I could see were the trees that were already there. I needed to find a new forest, so I could see new trees, and new possibilities.

Quitting the job I thought I would have forever was the scariest thing I’ve ever had to do – scarier than the MRIs, the hundreds of needles, and the swabs shoved up my nose. Now every day I wake up and know that I chose myself, I chose my healing, and I made the right choice.

Kerry can be found over on her blog, Body Mind Lyme, where she aims to create a positive space for those healing from Lyme disease and other invisible illnesses. She’s a contributor on the Global Lyme Alliance blog, as well as the websites Lymeology and The Mighty.

You can also connect with her on the following social media outlets: Twitter | Facebook | Instagram | Pinterest

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Chronic Illness has a way of turning every day tasks upside down. I've set out on a mission to find items that will help make my life, and even pain management, at least a bit easier. Click to read more about my top 5 favorite gadgets for making the day to day of illness more manageable.

5 Useful Gadgets That Actually Make A Difference For Me

 

*This post contains affiliate links. Your purchases through these links help keep this blog running, so thank you!*

Chronic illness has single-handedly turned my health and day-to-day into a jigsaw puzzle. From navigating all my symptoms to pain management, life looks much different for me these last few years.

Normal things that I used to never think twice about, I have to plan for (or around) in order to make them possible. A myriad of other adjustments have had to happen.

I subconsciously (and sometimes vocally…color me weird) ask myself questions that I never did before. “Can I load the dishwasher today?” “How much will my body have to pay for taking a shower right now…can I still make dinner after?”

Some symptoms are harder to manage than others. Managing pain can often feel like playing hide and seek with a ghost. Fatigue is another beast that’s really hard to wrangle.

But for some of my symptoms, I’ve found tools – aids, if you will – that make my life just a bit easier. And that little bit means a whole lot to this girl! From saving me effort to supporting me (literally), these have become my must-haves for navigating my day-to-day. All while living with a list of diagnoses I’m working hard to heal.

Update: I’ve actually been able to stop using some of these wonderful aides after starting a program called DNRS that has helped me begin to heal! You can catch up here.

Slim-Fit Earplugs

Do you suffer from sound sensitivity? These slim fit earplugs have been a godsend for me! Super soft and comfortable on sensitive skin, too. Click to read more about these and other handy gadgets I use to help me navigate chronic pain and symptoms!

One of my top 5 most debilitating symptoms might surprise the healthy, but for those who live with sensitivities YOU FEEL ME. I’m not talking about emotional sensitivities, but sensory. I’m highly sensitive to noises, some triggering me more than others.

The simple sound of plastic crumpling, glasses tinking, or the faucet running, for instance feels like someone is taking a bristled bottle brush, adding electricity and shoving it through both ears. Yeah, it’s fun. With continued healing I’m confident this symptom will get better, but for now: earplugs are a must!

These slim-fit earplugs by Mack were recommended to me by a dear friend who uses them for the same purpose. And boy are they a godsend! They’re smaller than regular earplugs which makes them more comfortable for me. The set of 10 even comes with a travel tube so I can always have them on hand and easy to find in my bag!

Neck pillow

A couple of years ago I noticed that my head and neck pain would consistently rise in the car. Once I realized how much having neck support would help, Trev picked up a basic neck pillow for me. I was amazed at the difference it made!

As with anything I’ve purchased to help me manage my day-to-day, this doesn’t remove my pain, but it makes riding in the car more manageable. Even short rides used to spike my pain more than they do now that I have that bit of support.

I actually attach my neck pillow to our headrest in the passenger seat by turning it backwards and “hugging” the top portion. Not all seats will allow this, but thankfully the design of ours does. It feels more comfortable to me that way.

Walking Cane

Healing with a chronic illness looks different for every person and every illness. But through the process of healing and treating, we can find ways to offer support and relief to our overwhelmed bodies. Click here to check out my top 5 tools that have made a difference for me!

 

If you follow me here or on social media you may already know this, but I like to name things. My oxygen concentrator is formally known as O2D2 (I grew up watching Star Wars with my siblings, can you tell?). So I couldn’t help myself to name my cane Hugo. It was easy since his tag said so.

My husband suggested I get one that had more than one pod on the bottom for extra stability since my balance varies from day to day. And, as he would smile and tell you – I wasn’t thrilled with that idea. Oh vanity. As if four prongs somehow makes my cane more noticeable. 😉

I found this one and thought it was a perfect fit. And after using it for over six months now I can say I’m so happy I went for the quadpod version. It gets a good grip on the surface and the handle has enough traction that your hand is not likely to slip. I even used it in a snow-packed icy parking lot recently, while also being supported by Trev on the other side and it worked really well supporting my weak side.

Pill Organizer

This is, by far, the BEST pill organizer out there. Each day's doses are in individual containers which makes it easy to grab and go to doctor's appointments, meals out, and a day or two of travel. Soft silicone lids make for easy opening on arthritic hands. Click to read more about this and 4 other handy gadgets that have actually helped me LIVE, even if in small ways, in spite of chronic illness.

Okay, I’ve been raving about this since I bought it so I HAD to include it here. I saw someone share the link for it in one of my Lyme support groups and I loved it at first sight. I’m a romantic, after all.

Why was I willing to drop $35 for a pill organizer, you ask? Because I was confident it would make my pill routine easier. From accidental missed doses, to opening pill bottles every day with sensitive hands, to packing meds for travel – I saw this as a huge help. And it has been just that.

Its soft silicone lids make it ultra easy for opening and the ‘x’ opening easy for sliding in each day’s supplements. My hands are so much happier! Not to mention individual containers make for easy access when you have a meal you’re eating out or a day or two of travel. Since I’ve already sorted out the week’s doses, it’s just grab and go! This had made for less occurrences of late or missed doses which is always a positive.

Motion Sickness Bands

For a year and a half, nausea was a frequent – if not constant – companion to me on this healing road. I’ve always had motion sickness, but this was different. And it grew worse when coupled with driving.

I always ride in the front seat and I’m pretty cautious about anyone else driving besides Trev because of how sensitive my bod is. He’s the only one who knows just how fast things can turn for me.

Motion sickness bands like these made by Sea Band have actually helped this for me. It took me a bit to figure out the right spot for the pressure point, but once I did I noticed a difference. You do need to put them on at the start of the car ride, I’ve learned – and adjust them if you’re not feeling the benefit.

Be gentle with yourself.

In the chronic life there are many things we can’t change immediately. Healing that doesn’t come overnight. But if we can take even a bit of the burden off by making a few aspects lighter, why not?!

You’ve just heard my top 5 current faves for navigating my day-to-day symptoms so now I want to hear yours! What is your favorite(s) pain/symptom/make life easier gadget?? Let me know in the comments!

Have you snagged your copy of the FIVE gifts to give yourself when going through a hard time? Be sure to download yours here.

These 5 gadgets were my go-tos in moments I needed them most. From pain management to coping with symptoms, these tools were so helpful to me! Click to read the full list.

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Susan's novel, The Last Letter, is a story for the brave souls fighting Lyme disease. But it's also for their families - to gain understanding and insight into the struggles of their loved one.

Meet the Author: Susan Pogorzelski & The Last Letter

A few weeks back I had an email drop in my inbox from the lovely Susan Pogorzelksi, a Lyme author who released her book, The Last Letter back in September. She offered to send me a copy of her book and I am so happy to now share the love with another Lymie!

I asked if she would join me here on the blog to share a bit of herself and the passion behind her book and she happily agreed to have me interview her. Having her here with us today is such a treat and I hope you enjoy connecting with her story and passion. She is such a light for the Lyme community!

Meet Susan

I invited Susan onto the blog to share more about her book, The Last Letter, a fictional reflection of her personal journey fighting Lyme disease.

Thanks so much for joining us on the blog today, Susan!

Thanks for having me, Kami! It’s a pleasure!

When did you first start writing?

When I was in kindergarten, my best friend and I would recite stories to our teacher, who would then write them down for us. We’d illustrate them with rudimentary crayon drawings and make covers out of cardboard and contact paper, punching holes in the sides to bind them with metal rings. These were our first books.

I think I knew then that there was something special about books–about the stories within the pages and the magic they create. I was fascinated by the fact that I could play a part in that–actually, I still am! It’s nice to know that feeling has always been with me.

Have you always wanted to be a writer?

Writing wasn’t my professional goal until I think I was in middle school–when I learned that was something people could choose. It was just always something I did, a part of who I was.

When I was younger, I was a voracious reader, and my stories emulated what I was reading at the time: I wrote mysteries after consuming the books in the Fear Street series. I wrote a book about a group of friends who were runaways after reading survivalist/dystopian books by Scott O’Dell and Lois Lowry (stories which will never see the light of day!).

But then when I was around twelve or thirteen, I discovered A Tree Grows in Brooklyn and coming-of-age literature, and I was hooked. I learned that I could use writing as an outlet to figure out what I was thinking and feeling–to figure out life–and stories became that much more powerful. I think that’s when I decided I wanted to be an author. I wanted to be able to share a part of myself in that way.

I’ve started reading the copy of The Last Letter you sent me and am finding it such an intriguing approach to sharing about Lyme. Can you describe the book to readers?

Written as a series of letters between 1999 and 2003, The Last Letter is a coming-of-age story about Lia Lenelli, a teenage girl struggling to shape her own identity while a chronic illness threatens to tear her world apart. While the book is primarily a work of fiction, it’s a semi-autobiographical account of my own struggle to find a diagnosis and subsequent recovery from Lyme Disease, particularly the emotional toll that having such an illness can take.

From Susan: "I realized that fiction could be the perfect conduit to help those with Lyme feel like they’re not alone while bringing awareness to an illness that is so easily (and dangerously) dismissed."

What made you decide to write the book as fiction as opposed to an autobiography of your Lyme journey?

I’ve been blogging and journaling about my own journey through Lyme since I was first diagnosed in 2012 (and through fifteen years of misdiagnosis before that) but never had any intentions of publishing a book on the subject, despite prompts from friends and family to share my story–a story I know thousands of people can relate to.

Whenever I did consider it, I couldn’t bring myself to write–I felt like I’d already said what I wanted to say and what was left, I didn’t have words for. But then in 2014, right after I reached remission, I wrote the beginning of what would be the first draft of The Last Letter: a letter from a teenager named Amelia to a stranger, to be placed in a time capsule as a reminder that she had once existed. I didn’t know where it was leading, and so I put it aside.

The idea of leaving something behind as a reminder that I had once lived–the idea of legacy, identity, and survival–began to haunt me, especially considering what I’d been through with Lyme. And so, as I began to write more, I realized that I could tell my story–our story–in a way that provided some emotional relief while really exploring these themes.

As I’ve been reading the book I’ve thought of how hard it can be for us to revisit moments of our past when we are fighting illness. Whether it’s a moment of pain or even a memory of not being sick, they can be hard to relive. Did you struggle with this when writing this story?

This is so true and part of why it was necessary for me to craft my story around a fictional narrative. I think life has a way of anesthetizing our experiences–once you’re healthy, you forget what the worst of it was like, how bad it really was when you were sick.

When I went into remission, I thought I’d put Lyme behind me, but then in early 2015, I had a severe relapse from which I’m still recovering. I knew what I’d been through before, but I was so eager to move on with my life, I’d forgotten how bad it was until I found myself back there again.

Writing this book through my relapse made me not only remember that pain, but it forced me to confront it. Fiction provided enough of a distance that I could do so safely.

I read my book the other day for the first time since the release. I wanted to read it objectively–not as the writer or as an editor with a critical eye, but as a reader. I’ll admit, it was hard.

Because now that time has passed and I’m slowly getting better, I’m again forgetting all those days when I couldn’t lift my head from the pillow, or when I writhed from the pain in my legs, or how I fought for every word when I was writing the book because my neurological issues were so bad, I had only brief pockets of clarity before the fog took over.

Because I was writing the book as fiction, I could lie to myself and pretend it was Amelia’s story. Now I’m reminded that it was mine–that it’s all of ours in some way or another–because everything Lia experiences both symptomatically and emotionally is what I’ve experienced, too.

That’s always the hardest part: knowing how much truth there is even in fiction. But there’s also a sense of pride there. Because reliving those experiences, I’m reminded of what I survived–that I did it once, and I can do it again. It’s what keeps pushing me forward in recovery.

What do you hope readers experience when reading your book?

Part of the reason I chose fiction for this story is because fiction is a powerful form of storytelling. When you’re reading a memoir, the thought that this is someone else’s story is still lingering in the back of your mind.

But when you read fiction, you become the characters–you think, feel, and experience what they do. I realized that fiction could be the perfect conduit to help those with Lyme feel like they’re not alone while bringing awareness to an illness that is so easily (and dangerously) dismissed.

That’s all I could ever want for this book–for it to help someone. For someone to recognize themselves in it and know they’re not alone in their suffering–that there are people who are fighting along with them.

And for those who don’t have Lyme, I hope it brings to light what those with Lyme endure on a daily basis and why we need support, acceptance, and unconditional love more than ever.

What’s next for you? Are there dreams you have for 2017?

It’s been a long journey through recovery, so I’m hoping to keep getting better so I can be in a position where I can be of service to people. On the Lyme front, I’m hoping to do a lot more as far as advocacy and building awareness, especially when it comes to healing emotionally from this illness.

I’m not sure what that looks like yet, but I’m happy to be playing a small part by contributing my writing on The Mighty and the Global Lyme Alliance blog. I’m also working on my next novel, which I hope to release next fall.

Is there anything else you’d like the readers to know?

If I could speak directly: I want you to know I think you’re some of the bravest, most inspiring people I’ve ever met. This disease is ruthless, and it often feels lonely and isolating and like no one understands. To be able to face that takes so much strength and so much courage, and I hope more than anything that you’re able to recognize that strength and courage in yourself.

This Lyme community is something truly special. When you cry, someone is there to dry your tears. When you fall, others lift you up. When you feel weak, we’ll remind you that we’re fighting with you. Please don’t ever forget that you have people on your side and that you’re so much stronger than this disease makes you feel. Stay strong. Be brave.

And to you, Kami: Thank you for being such a strong voice in the Lyme community! It’s been a pleasure getting to know you, and I’m grateful for this opportunity to share my book.


A big thank you to Susan for joining me for this interview. And for being a voice of hope and compassion to Lyme sufferers around the globe. Your story is one that so many can relate to and find comfort in the reminder they’re not alone.

You can find Susan’s Lyme book, The Last Letter on Amazon and other online book retailers. Or you can purchase signed paperback copies on Susan’s website

To connect with Susan, look for her on the following social media outlets:

Twitter | Instagram | and Facebook at her page Lost in the Lymelight, a community focused on healing from the emotional impacts of Lyme disease.

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