Home » Lyme Disease

In July 2014 I was diagnosed with chronic Lyme disease after many years of mysterious symptoms and declining health. Beginning in childhood I experienced far too many frightening emergency room visits, usually ending with the “diagnosis” that everything was “all in my head.” The journey has been long, painful, and I’ve come to understand more than I ever thought I would about living a life of disability. I have a heart of compassion for all who have faced a similar road.

Lyme Disease Awareness

Lyme is frequently misdiagnosed as MS, fibromyalgia, Chronic Fatigue Syndrome and various other multi-systemic diseases that are difficult to diagnose. I was diagnosed in 2011 with a relapsing-remitting case of multiple sclerosis, but in 2013 began to see my health rapidly deteriorate. {You can read about my misdiagnosis HERE}

This page is dedicated to information, awareness, and to those I know + blogs I follow that are also fighting their own battle with this disease. If there’s anything I wish I could go back and change, it would be listening to my body and symptoms better. If you’ve been questioning strange symptoms and/or a diagnosis, be your own advocate! If after reading through the material below you have questions on whether or not you may have Lyme disease, be sure to check out the symptom list questionnaire at cangetbetter.com. The list and website was created by Dr. Richard Horowitz, one of the leading Lyme-Literate doctors in the nation and this symptom list has been so helpful for many of us Lymies in our quest for answers.

Links on Lyme:

ILADS

lymedisease.org

Prevention

tick-borne disease alliance

read the stories of other Lymies

PhilippiJoy

when the curls fell out