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Have you been considering IV antibiotics for Lyme treatment? Listen in as Genevieve Goetz shares her story of how they're helping her get her life back! | The Wellness Crossing: www.livinggraceblog.com/podcast

How Genevieve is Finally Healing from Lyme

When I first was diagnosed with Lyme disease, I was overwhelmed with two strong realities.

The first? The vast range of treatment options. Seriously. So many.

And the second: relief that at least I had a new direction for healing.

The tension so many of us feel upon diagnosis is real and can at times weigh heavy. Because, let’s be honest okay? There are, what feels like, a gazillion different directions we can go with treatment.

And, for a lot of us, the thought of hearing one more opinion from someone on which step we should take next can push us over the edge of sanity. (No? Just me?)

We navigate thoughts of “am I making the right decision on treatment for myself?” and “How long until I’m officially feeling better?” To top it all off, we inevitably become human guinea pigs in the quest of “what’s the right treatment path FOR ME?”

It’s different for all of us, right? Whether you’re treating Lyme or treating another illness, often times what worked marvelously for someone else may not do a single thing for me. Or even more frustrating, it might be the thing that pushes our body too far.

That unknown takes a lot of bravery to travel across. But something that helps? Hearing the stories of others who have gone before us.

Rising above fear.

Today my friend Genevieve is sharing her story for this very reason. To help others who are endeavoring to heal from Lyme and have been considering IV therapies.

Genevieve’s bravery in rising above her fears struck me as we chatted in this episode of The Wellness Crossing. As I heard her share her journey through treatments and what led her to giving IV meds a chance, I heard the heartbeat of so many others who are reaching for wellness.

It’s that common thread of strength pulsing through our veins, to not give up. To challenge our fears. And to reach for healing of body, mind and spirit.

It’s the belief that we are more than illness. That we are defined not by our struggles, but by the way we live and love in spite of them.

Listen in…

We’d absolutely LOVE to have you join us for this chat and hear from you in the comments! Click below to listen to the episode now or subscribe on iTunes, Stitcher, or Google Play!

 

Connect with Genevieve…

Antibiotics can be a hot button when talking about treating Lyme disease. But today Genevieve is sharing her story of how they've been a game changer in her own story of healing. Click here for more of her story! www.livinggraceblog.com/podcast

Genevieve lives in upstate NY with her fiancé and two cats. She has been chronically ill for years and recently had successful treatments for Lyme Disease and other co-infections. After a long time, neurological, muscular, and mental symptoms are much better and real healing has begun. The CDC disputes that Chronic Lyme exists, and that IV treatments are dangerous and unhelpful. Every Lyme patient is different but this has saved her life. When Genevieve isn’t fighting Lyme 24/7, she loves to write, she has been published by numerous blogs and sites like The Mighty. When she can, she likes to practice yin/restorative yoga, garden, and read.

Read her blog | Connect on Instagram

What treatment has been the most beneficial in your own healing from Lyme? I’d love to hear in the comments!

Antibiotics can be a hot button when talking about treating Lyme disease. But today Genevieve is sharing her story of how they've been a game changer in her own story of healing. Click here for more of her story! www.livinggraceblog.com/podcast

Healing from Lyme is a complex journey for many who are diagnosed. It can be incredibly confusing trying to navigate the unending list of treatment options and find what's best for YOU. But sometimes how we get there is through listening to others' stories and learning to trust our instincts. Today Genevieve Goetz is unpacking what it's looked like for her to face her fears and give IV antibiotics a chance. And you don't want to miss how her story is changing! Click to tune in. :) www.livinggraceblog.com/podcast

When you're treating a chronic illness it can feel overwhelming narrowing down treatment options. What worked for one person may not have worked for you, or vice versa...so where do you begin? Today Genevieve is sharing her story of moving past fear to explore a new treatment option for herself. And how it's helping her start to get her life back. Click to listen in to this episode of The Wellness Crossing: www.livinggraceblog.com/podcast

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Have you ever tried Reiki before? I recently had my first session and I'm talking with my Reiki healer today on the podcast! Tune in to hear Melani Schweder's healing story and how Reiki plays a role in her overall wellness.

Reiki: Pursuing Wellness of Body, Mind & Spirit

When you think of “wellness”, what first comes to mind?

Is it the food you eat? A practice of self care? Taking vitamins?

I know there was a time when wellness to me simply meant feeling healthy. I didn’t think much about what I ate, how I intentionally cared for my body, or the type of exercise I did. And I certainly didn’t think much about the role my emotional or spiritual health played into my overall wellness.

Well, let’s get one thing right: much has changed for me in this department.

I fully believe that the well being of my emotions, spirit, mind and body ALL play their part in my wellness. In helping me be the best version of me there is.

And on my personal exploration and discovery of what wellness truly means to me, I’ve opened my eyes and heart to a variety or healing modalities. From drastic diet changes that honor my specific needs to making intentional time for rest. I’ve experimented with exercise appropriate for my body and neuroplasticity practices for supporting brain health.

But more recently, I had my very first experience with Reiki energy healing. Reiki is something I had heard about and considered exploring for some time but kept putting it off. It’s a Japanese healing technique that was developed in in the 1920s. It’s a natural approach to healing on a spiritual, emotional and physical level and the more I read about it the more fascinated I became.

So I scheduled my first appointment for a distance Reiki session with Melani Schweder and had such a great first experience I scheduled a second. Today she’s joining me on the podcast to talk about her own healing journey, how Reiki has played a role in her wellness and how we can pursue wellness of body, mind & spirit.

To tune in, click below or visit the podcast on iTunes, Stitcher, or Google Play!

 

About Melani:

Melani Schweder is a Certified Health Coach, Reiki Master/Teacher, and writer based in Denver, Colorado. She calls herself a chronic wellness advocate because she believes that even those with complex illnesses can live a life of joy and purpose. Her own healing adventures in Lyme Disease and Chronic Fatigue Syndrome helped her realize the importance of nutrition, mindfulness, and self-care, and she uses her own experiences to help others unlock their own innate healing potential. When she’s not working with clients, she’s usually playing with her dog River, whipping up something in the kitchen, or spending too much time on Instagram. You can see what she’s been up to at: www.abrighterwild.com

Connect with Melani on Twitter | Facebook | Instagram

 

Have you ever tried (or want to try) Reiki? Let me know in the comments!

eiki Healing- Pursuing wellness of body mind & spirit.Melani Schweder: Pusuing Wellness of the body, mind & spirit through Reiki energy healing. Click to tune in to The Wellness Crossing podcast and hear this episode!

Have you ever tried Reiki? In this podcast episode I'm chatting with Melani Schweder, a Reiki Master/Teacher who has seen the tangible benefits of Reiki in her own healing journey from Lyme disease. Click to listen in!

Melani is Reiki Master/Teacher and Primal Health coach specializing in helping people with complex illnesses. With her own personal experience of healing from Lyme disease, Melani talks about the unique approach she offers through her own experience and sensitivity to the complex nature of healing from chronic illness. Click to listen in on this podcast episode!

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In a world where the ill often are overlooked or feel invisible, it's so important that we learn to honor our true self. Kat & I are chatting on the podcast about what that looks like for us as we transition from illness to wellness. Click to listen in!

Honoring our True Self & Transitioning from Illness to Wellness

In these last few months of seeing my health begin to improve, I’ve found myself in unfamiliar territory. Much like there’s no road map for how to navigate the life of chronic illness, there’s most definitely not one for how to transition from illness to wellness.

So I’m often testing boundaries as I try and figure out how far this healing body can really take me. And while not every attempt has gone well, I am grateful for the courage it takes to both reach outside of my comfort zone and learn to rest.

But I’m also struggling with all kinds of emotions. Over how good it feels to enjoy more of life outside the home. And the tensions I can feel between embracing newfound healing and hurting for those I love deeply, still waiting for their own healing strides.

I’ve wrestled with the questions of “what next”. What to do with this blog, my creative passion, and my desire to help others on their healing journey. And now that wellness is entering the picture more and more, the more I wonder what the best next thing is.

For now, I’m giving myself plenty of room to process, explore, dream and create. While also making sure I emphasize healing every step of the way. Today’s podcast episode is of me doing that with one of the sweetest souls, Kat Woods.

Kat and I connected on Instagram in the last couple of years and have been healing from the same health challenge (#lyme). This was the first time we’ve spoken with each other off the screen and squares of Insta and we both agreed it was JUST the conversation we both needed.

Kat is a trained chef, an indie-cartoonist, and an all-around vibrant being. She began the blog, Hope Heal Cook, and has been inspiring and encouraging others with her beautiful nourishing meals. The way she has labored in love for her body’s nutrition is absolutely amazing. Just check out her feed and you’ll see what I mean. I’ve learned more about produce from her than anywhere else! Particularly how many fruits and veggies I didn’t know existed. 😉

Pull up a chair (or headphones) as we chat all about our individual journeys through healing. We’re unpacking how we’re learning to transition into a new “normal” and how Kat supports her body through diet.

Listen below or tune in to the podcast on iTunes, Stitcher, & Google Play!

 

Show Notes:

Be sure to check out Kat’s book “The AIP Instant Pot Cookbook“!

Find Kat on her blog, Instagram, Facebook and Twitter.

Follow along and connect through the Hope Heal Collective Instagram feed!

 

How to support and honor your true self? Leave a note in the comments! I love hearing & learning from you!

 

Catch up on all the episodes of The Wellness Crossing Podcast by clicking here. 🙂

 

Kat Woods on the Wellness Crossing: Honoring our True Self and the unknown territory of transitioning from illness to wellness. Click to listen!

What does it look like to honor our true self while healing? Join Kat Woods and I on the podcast as we chat all about transitioning into wellness, how we are embracing our full selves and more! Click to tune in :)There's not a road map for figuring out how to transition back into wellness when you've been healing from a chronic illness. Today on The Wellness Crossing Podcast Kat Woods and I are chatting about our recent journeys of entering back into a new "norm" and what it looks like to honor our true selves in the process. Click to listen to the episode!

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Often we view healing as a destination, something we wait to arrive at. But healing is more of a process, and one that I've been working hard on as I've been following the DNRS program. Click to read my 5-month update!

Healing is a Process: My 5-month DNRS Update

“So, are you, basically…all better?”

I sat quietly on the sofa, trying to figure out how to respond to the person who asked me. Have I been improving? Yes. Am I fully healed? No.

But I struggled, more so because, whether or not it’s intended, the question invites closure. Something we, as humans, really, really like. Don’t we?

To finally get that degree under our belt. Or discover a positive on the 11th pregnancy test. We want there to be an “end” to the waiting, a destination to arrive at. Because then, things will be better.

Yet…healing, in the context I’ve been learning to embrace it, has taught me there’s so much more depth in a journey rather than a destination.

Because for me, waiting to arrive at “fully well again” was a hope that faded fast. I found myself sitting in a place of acceptance, wanting to just be okay with a reality that sick was a new norm.

It gave me an odd sort of comfort. That I didn’t have to “fight”, and I could just “be”.

But then a few months ago a new treatment crossed my path that gave birth to a new experience in the realm of healing. It gave me a reason for letting go of the concept of “fighting” and empowered me to redefine what it looked like to actively heal.

And it gave me hope.

It’s been awhile since I’ve given any sort of update since starting the Dynamic Neural Retraining System, so I thought I’d do that today. Because while I’m still healing, I believe in celebrating the wins. Big or small. Of which I’ve experienced both!

My 5-month Update

In my last update, I listed off some of the improvements I’d seen in energy, pain and inflammation levels, fatigue, and dizziness. All of those improvements have remained or improved, but my walking distance has increased substantially!

As my legs have continued to grow stronger, I’ve enjoyed long (and often faster-paced) walks with my hubs. Which has been such a great thing! I walk to coffee shops or the farmer’s market without thinking twice. And several months ago that wouldn’t have been possible.

Summer has been another test for us to observe how well I’ve actually improved. And while I’m still improving in some areas, my overall experience in the summer heat is definitely better!

The temps here in southern Oregon have been hot at the peaks of each day, with a bit cooler evenings and mornings. But my body has been handling it so much better than it did the last few years.

Where before I would have felt like I’d pass out at any moment these last few summers, this year I am tolerating it much better. Instead of staying indoors, I can be out in the heat most days, soak up the sun’s rays, and even walk in moderate temperatures without fearing I’ll faint.

But I think my biggest accomplishment is that after 3 years of not driving I was able to get behind the wheel again! And starting back up with a manual again, at that, I’ll have you know. (The hubs said I picked it up quickly so I’m gonna throw in a not-so-humble-brag right here.) 😉

With driving comes another beautiful thing: more independence. And anyone who’s lived housebound for any stretch of time understands what a glorious gift that is!

Some of my other notable improvements include being able to travel several hour distances and sit in restaurants without earplugs (heck, just be around people without earplugs). It’s been so helpful to feel more comfortable in my skin with so many less symptoms grabbing my attention.

I feel happier, lighter, and more filled with hope than I had been in long, long time. Which is notable to me because I swear hope had become a foreign feeling to me. It felt like I couldn’t grab onto it fully no matter how hard I tried. (So I just might need to write a post about that and the connection I see with having an impaired limbic system…)

As grateful as I am for this healing, none of it came to me easily.

It didn’t just “happen” one day or sneak up on me. And I don’t believe it’s a miracle.

Why?

Because I’ve been been working hard, healing my lil’ ass off.

From taking care of my body with food, self-care, rest, and supplements over the last few years to the commitment I’ve made to retraining the neural pathways in my brain every day, I’ve worked for this. And the efforts are paying off.

Healing is like that for any of us, isn’t it? It takes time, effort, commitment. Belief it can happen and the support to help us pursue it.

True healing isn’t just something that appears all of a sudden. It’s not a one-and-done pursuit. For me, I believe my physical healing will reach a point where it’s no longer my main focus.

But I’ll forever be learning to pursue healing of body, mind and soul.

So whether you’re reading this because you were curious about DNRS or you wanted to fuel your own fire of hope that improvement is possible, or maybe you don’t even know why you clicked on this post in the first place…

Whatever the reason you’re here, I just want to leave you with this:  

I’m proud of you. I acknowledge your efforts and how hard you’re working on healing. And I believe things can get better. <3

Wanna know more about the DNRS program? You can check it out here. (<<<—aff link)

Over the past few months I've seen layers of healing begin to unfold as I've been following the DNRS program. I'm diving into just what the progress has looked like for me and why I'm releasing the idea of "fighting" my illness and choosing to lean in to the journey that is healing.

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Have you tried what seems like all-the-treatments and there seems to be a missing piece? Check out the 12-week program, Empowered Healing, and learn how to reclaim wellness! Click to read more!

Empowered Healing: Reclaiming Your Health & A GIVEAWAY

This giveaway is sponsored by Innovative Medicine and is open through May 31, 2017 at 11:59 pm PST. Scroll to the bottom and follow the directions to enter!

Over the last few years I’ve done anything but lie in wait for healing. I have made a lot of sacrifices, faced incredibly difficult treatment protocols, and put a huge daily effort into supporting my body’s healing.

My diet has shifted dramatically, and multiple times at that. I relied on an expensive supplement plan just to keep functioning. And up until 3 months ago I spent the majority of my days at home. Not out of choice, but because my unimaginable fatigue and symptoms demanded so much rest.

But in the last three months I’ve seen tremendous healing come from adding in an entirely new treatment program called DNRS. And because of that I’m truly starting to get my life back. DNRS is based on the foundation that we have the ability to heal ourselves by rewiring our brain. You can read more about that here.

Because of this new addition to my healing protocol, I’ve become absolutely fascinated by reading up on neuroplasticity. I’m always intrigued to hear about other treatment programs with similar, yet unique perspectives on healing.

So when Monica from Innovative Medicine reached out to share more about their Empowered Healing program launching on June 1, I was all ears!

Psssst…spoiler alert: they are giving away FIVE of their 12-week programs here on the blog! You can scroll down to the bottom for more info on how to enter.

What is Empowered Healing?

Empowered Healing is a 12 week program designed to put you in the driver’s seat of your health. EH is founded on the idea that we all have the ability to reclaim our natural state of health and functioning. And their program gives you the tools you’ll need to do just that: to activate your journey back to health.

What you’ll learn…

(taken from their website):

  • A holistic understanding of the underlying causes of illness and the critical (yet often overlooked) mechanisms that determine how people truly heal.
  • How to start feeling better instantly and optimize your recovery response by learning and applying the scientific evidence that the body can heal itself.
  • The 7 key fundamentals of health and how to address each of them in a personalized way that starts with your current individual-based priority.
  • The ‘Healing Blueprint’ framework: A five step process for charting your own unique course back to health, starting from right where you are.
  • How to solidify your newfound vitality, step fully into your healthiest self and sustain your new ‘set-point’ for the rest of your life.

The program consists of a 12-week guide, video lessons, interactive exercises, personal accountability calls, email coaching, research, and an online community to foster your healing journey.

I also found it super compelling that the program has been 12 years in the making…12 years! The creators of the program spent that time interviewing doctors from around the globe and learning from them. And now have used what they’ve gathered to create a comprehensive system that offers tangible steps for healing.

One of the creators, Ben Ahrens, suffered years with Lyme disease and has seen tremendous healing through implementing some of the practices presented in the program. You can listen in on his fascinating story he shared on a TED talk here.

“Could the program help me?”

As I was reading some of the info on the website, their description of who the program is for tugged at my heart. Simply put, it’s because I feel like it resonates with so many of us that have been working hard at healing:

“Whether you’re chronically ill and looking for ways to optimize your success outside the doctor’s office, wondering why various treatments don’t always lead to long-term health, or simply curious about what you can do in your personal life to compliment your medical treatment, this 12-week program will show you how to implement all of the discoveries and principles that Innovative Medicine is based on to empower yourself and reclaim health outside the medical office.”

How many of us have tried yet-another-treatment that helped someone else, but our body couldn’t tolerate it? Or it made us worse? And how many doctors have we seen that left us wondering if there was possibly a missing link? Perhaps something they hadn’t thought of that could help.

I know I, for one, could answer so many of those questions with a head nod. Or a blank look while trying to add up the number of times I’d been there.

Empowered Healing is a program designed to help you reclaim your body's natural state of health. And if you're tired of a one-size-fits all healing plan, this program may be just the thing you need! Click to read more!

So what do I think?

I have to say that I’m excited about this program! I’ve seen firsthand how powerful neuroplasticity based healing can be. And with that being just one component to Empowered Healing, I’m embracing it with open arms.

I’ve had a chance to look over their beta program and will be diving into the full program in June. And I’m impressed just from my first exposure to the program!  The science behind it, their teaching style, and holistic approach really resonates with me.

And if you’re one of the lucky winners, maybe we can swap our experiences as we go through the program together! 😉

The GIVEAWAY:

Innovative Medicine was kind enough to offer not one, but FIVE lucky readers their brand new 12-week program!

Here are the deets:

  • Giveaway winner must be 18 years or older.
  • You may earn up to EIGHT entries.
  • Submit all entries by 11:59 PM, May 31, 2017
  • Winners will be contacted by email and must respond within 24 hours to claim their prize.

To enter click this link or enter using the Rafflecopter form below!

Connect with Innovative Medicine on Facebook | Twitter | Instagram
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Why would you like to win the Empowered Healing program?

Enter to win an Empowered Healing program from Integrative Medicine: the 12-week program that's designed to help you reclaim health and wellness through a holistic approach to healing.

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After spending years chronically ill I began researching the DNRS program as a natural alternative to healing. I've seen great results and am sharing 3 important questions I've been asked - and answering them! Want to know more? Click here to learn more about how the treatment works!

3 Things You Should Know About DNRS

This is not a sponsored post. These opinions are entirely my own and are in no way endorsed by the Dynamic Neural Retraining System.

If you read my post last week, you know that over the course of the last six weeks I’ve been adding in a brand new treatment. And it’s a program that’s, well…outside of the box.

It doesn’t come in the form of capsules. Or an injection. And it doesn’t involve a device, for that matter.

Because this treatment, interestingly enough, can’t actually be seen.

Sure, the information and instructions for DNRS (Dynamic Neural Retraining System) are delivered in the form of a DVD series and a personal workbook. So there’s something tangible you have in hand as you’re learning. But implementing the program involves working on/with your brain.

Which means it’s a lot of internal work.

The techniques presented in this program are based on research surrounding neuroplasticity. Which, in short, refers to the brain’s unique ability to change itself. Wild, right?

So today I thought I’d answer some of the questions that I’ve been asked the most since starting DNRS:

  1. What is DNRS?
  2. How would retraining the brain help current health challenges?
  3. Is it worth the $250+ investment?

These are all questions I’ve asked before starting the program so you’re not alone! Information on healing through neuroplasticity is still relatively new to me, but I’ve been seeing profound shifts begin since starting DNRS.

So how about we just tackle these one by one?

What the heck is DNRS?

As I mentioned before, the program arrives at your door with a set of DVDs and a personal workbook. You’re encouraged to complete the program (which consists of 14+ hours of material) in 4 days in order to get the most benefit, but I’ll be honest: it took me a bit longer. But I gave myself some grace and, as I’ve shared, am still seeing positive shifts in my health.

In a nutshell, the DNRS program aims to first educate you in the science behind neuroplasticity and then equip you with both the tools and techniques to help you repair your limbic system.

I wasn’t familiar with the limbic system prior to this treatment program. So in case you’re like me and your thoughts are starting to drift toward what you’ll be eating for lunch, let’s quickly cover the basics.

The limbic system consists of several parts of the brain including the hypothalamus, hippocampus, amygdala and cingulate cortex. Together, these structures make up the “feeling and reacting” functions of the brain.

Now if the limbic system is impaired due to injury or trauma (whether that’s an infection, chemical exposure, mold toxicity, emotional or physical trauma, etc) it becomes hypersensitive. And in this hypersensitive state it will overreact to even the smallest stimuli that would otherwise be passed over as harmless.

Since our limbic system works intimately with our endocrine, autonomic and immune systems, it inappropriately activates those systems which can end up in a “party” of symptoms we never invited.

The DNRS program gives you a system to implement that will help rewire the limbic system so that it’s once again functioning properly. The treatment you implement includes both daily brain exercises you work on throughout each day and one hour of devoted time of “practice”. Practice each day involves a combination of mild movement, vocal exercises, and mindfulness techniques – all to help restructure the pathways in the brain.

I obviously can’t share exactly what the practice outlines for you to do each day, but something that may be helpful to talk about is the reality that I was very limited before starting this. And even I was able to implement these practices in the beginning. Sometimes I just had to do it in an abbreviated way, such as lying down or sitting during a portion of the daily one-hour of practice.

Want to learn more about the Dynamic Neural Retraining System? After years of treatments, doctors, and way too many years spent home-bound this method is helping me HEAL! Click to read more as I'm responding to my 3 most asked questions about the program.

 

How would retraining my brain help my current health challenges?

Great question! And one I asked over and over again before purchasing the program.

One of my first thoughts upon looking further into the program was that it seemed like everyone was “drinking the Kool-Aid.” But heck, I was desperate. And if  the Kool-Aid actually worked, I couldn’t care less about the modality. I just wanted to be better!

And while I am getting better, this most definitely is not brain washing. (Or sugary Kool-Aid for anyone wondering). There was an important distinction I knew I needed to make early on in the program. As I learned more about the brain and neuroplasticity it became clear I had to treat my brain just like I was treating my body.

My magnesium has been regularly low for years now, which is why my naturopath has been supporting my body’s diet with magnesium supplements. My blood pressure has also been regularly low, so I frequently drank Himalayan salt water to help keep it from dipping too far.

So for me, it was helpful to view my efforts in neuroplasticity retraining as working with the organ of the brain.

As in: utilizing my mind to retrain my brain’s pathways. And while a huge part of this program is working with your thoughts, it’s more specifically working with the thoughts/messages your brain is inappropriately sending.

The aim is to redirect the neurons that are firing incorrectly (i.e. sending symptom and pain signals) so that over time they are no longer wired with the same old pathways. The outcome is rewiring the brain with new, healing pathways so the limbic system can be properly functioning once again. Which results in lessening symptoms!

I’ve heard all sorts of “just think positive” mantras and over these past years of health struggles they’ve felt like a big ball of blame. The message received was “you’re not positive enough, therefore it’s your fault you aren’t getting better.” And I don’t buy that one bit.

Any mindset shifts I’ve experienced (or been able to set in motion) in this program have been a direct result of experiencing tangible healing. Meaning: literally feeling a difference in my brain and body. It’s been like a fog has been slowly lifting. A fog I simply did not invite or entertain. Because believe me, I wanted all of the symptoms and discomfort GONE. 

This program isn’t about just thinking positive, but rather learning how to communicate with your brain to help it reach wholeness. And what I’m finding with each passing week is that I do feel lighter. Even happier, but genuinely so. And it coincides with the healing that’s begun in my brain and body.

How did I decide it was worth the $250+ investment?

First off, I can tell you one thing that didn’t help me decide: a guarantee I would get better. Because there wasn’t one. I knew that just like every other treatment I tried, no one could tell me this would 100% work for me.

But the following things really did help.

    1. A money-back guarantee. This was a first for me. We have shoveled out tens of thousands of dollars, much of which we fundraised, to pay for treatments over the years. Never once have we seen this. If you commit to the program for the full 6 months and don’t see significant improvement, they’ll refund you. That’s quite a statement of belief in their program!
    2. It’s really not that expensive. I probably don’t need to say more after what I just said about “tens of thousands”, right? But in case you need a further statement: $250 doesn’t begin to touch how much my supplements cost us right now each month. If getting me better means being able to go off of those, it’s well worth it.
    3. The research speaks for itself. The more I’ve studied about neuroplasticity through the program (and now after), it JUST MAKES SENSE. Variations of the techniques in this program have been proven effective in so many others. Want to be really amazed? Watch this TED talk given by Dr. Jill Bolte Taylor who suffered a stroke and talks about her experience and neuroplastic healing.

The following contains affiliate links which means that if you purchase something through one of these links I may receive a commission – at no extra cost to you. As a reminder, I only promote things I have personally tried or believe are beneficial. Any commissions earned help me keep this blog running. So, thanks! 🙂

You don’t have to take my word for it. Learn more yourself!

Since starting the program I’ve had a craving for learning more about the brain, specifically neuroplasticity. So I have a running list of the books I’d like to read and recently checked out my first one from our local library by Dr. Norman Doidge, called The Brain’s Way of Healing. I’ve just started and already it’s a fascinating and helpful read! I also plan to read his first neuroplasticity book, The Brain that Changes Itself.

Since watching the TED talk video I mentioned earlier I’ve been eyeing Jill Bolte Taylor’s book, My Stroke of Insight, for a future read also. Because after watching her tell her story I just have to know more!

Finally, of course, the Dynamic Neural Retraining System’s website contains more information about both the program and understanding the science behind their approach. And it’s a great way to check it out more before deciding if it makes sense to purchase the program for yourself. Let me know if you do! I’d love to connect.

Have you read any books on Neuroplasticity? Have you done the DNRS program or something similar? I’d love to hear your thoughts!

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How the DNRS Program is Helping Me Heal

If you’ve been following me here for awhile, you know that here in this blog-space I share the grit and guts of what I’ve experienced in the realm of the sick life. But if you’d like to catch up on my story to understand how powerful the news I’m about to share is feel free to check out this post. It’ll give you a look at what used to be an average day-in-the-life for me. Don’t worry, I’ll wait right here til you’re done…

Ready? Okay.

So a little over a year ago I met a doctor through a friend and my goodness has she been a godsend to me. Quite frankly, I believe she is one of two doctors that has helped keep me alive. Well, them and a nurse who quite literally gave me back my life in 2015.

Through her care I’ve seen some beginning signs of improvement as well as experiencing a much lower # of ER visits (1). But I’ve still been largely home bound. Weak. Frail. Experiencing way too many symptoms to be normal. She was feeling hopeful that by the year’s end I’d see some marked change. And I tried my best to hope with her.

But then I was sent a message from an Instagram friend that told me I needed to check out the DNRS (Dynamic Neural Retraining System) program. She said it had completely changed her life and since our stories were so similar I thought I should at least look into it.

So I clicked over to the website and began to read. My first response was honestly, an eye roll. “‘Retrain the brain’? Do they think this is all in my head? This sounds like another load of positivity B.S. So…I’m outta here.” I replied to the friend with a thanks, but this just isn’t for me. And I thought that was it.

But it KEPT. POPPING. UP.

A few weeks after I said ‘no thanks’ it popped up again. Then a couple days later a friend messaged me about it, asking if I’d heard of it. Call it what you will: a sign from the universe, or God, or my own body/brain trying to send me a message, but I just couldn’t get away from it.

So I looked at the website again. I watched tons of the testimonial videos as well as a presentation by the creator of the program, Annie Hopper. Her story, though different than my own, also held so many similarities. And she confirmed what I knew to be true: this illness is NOT all in our heads. So I softened.

I felt like her heart was compassionate toward others who had gone through what she had. And her incredible story was this: I learned to retrain my brain and I healed myself.

That’s quite a bold statement, no? So I looked at the price of the program and I talked it over with Trevin. A couple weeks later I had the DVD program in hand. It came right after I’d finished running my very first workshop with some of the readers here at Living Grace. The timing felt perfect.

Have you heard of the DNRS program based on the research of neuroplasticity? It's a fascinating program that is helping me heal from years of chronic illness. To read more of my one month update, click here!

I entered the DNRS program with a lot of skepticism.

I just feel like you should know that. It definitely wasn’t as if I bought into this deal right off the bat. But there were some aspects of the research I found online surrounding the brain’s ability to change itself (neuroplasticity) that I couldn’t ignore. And seeing how it had helped so many others similar to me gave me enough hope to give it a shot.

The program is designed to help you rewire your limbic system so that it builds more functional neural pathways. As I learned more about the brain and limbic system in this program, the cause and effect of why I continued to grow sicker or only experience small amounts of relief started to make more sense.

In the DVDs Annie explains that when the brain experiences various forms of trauma, whether that’s viral, physical, emotional or otherwise,  a maladapted stress response can be triggered. Essentially that means that our brain’s instincts to protect us get kicked into overdrive, leading our limbic system into a constant state of fight or flight mode.

And how on earth could I get better if my brain constantly thinks it’s under attack?!

This video documentary on neuroplasticity is quite fascinating if you’re interested in understanding more. (Just feel free to ignore the creepy music.) Variations of these concepts have been proven effective in the treatment of physical injuries, such as stroke patients or those who have suffered brain damage. And it’s also helped those who have suffered psychological PTSD or have OCD. 

Next week I’ll be unpacking a bit more about neuroplasticity and the design of the program, but until then you can also check out the website to watch some tutorials and read up on the science behind it. (<—that’s my affiliate link, which means I may earn a small commission if you click on it and purchase the program. As a reminder, I only share things I’ve either tried or believe in the value of. In this case: I’ve tried it and it’s helping me heal!)

My one-month improvements:

I’ve been on the program for just 4 weeks now and the changes in that short period of time have been quite amazing. Especially when Trev and I compare it to the life I’ve been living the last few years. And while I have more healing to work towards, I’m truly grateful for these beginning signs of healing.

As a pre-cursor to my improvements here’s a list of most of my diagnoses: Lyme, Bartonella, Babesia, Mold Illness, Heavy Metal Toxicity, Fibromyalgia, Chronic Fatigue Syndrome, MTHFR genetic mutation and POTS).

  • I’ve gone from barely being able to walk a couple blocks on a very good day to walking almost daily the last week+.
  • My fatigue levels used to be at an average of 7-9 every day (on a scale of 10 being “I can’t move”) and now my levels are averaging below 5 consistently.
  • The inflammation and joint pain I’ve consistently lived with hasn’t been this low in over 4 years.
  • My strength is slowly growing and my litmus test is being able to do the dishes almost daily. They used to sit an average or 2 days before I could get through another round.
  • Dizziness used to be one of my most debilitating symptoms. Now? It’s at an all time low also.

The healing process continues…

There continue to be new things that pop up and surprise me as I continue to commit myself to the program and work toward further healing. And in my commitment to the program, this post will be one of my last to mention diagnoses or symptoms for awhile. It’s a necessary part of retraining my brain in this critical stage of early healing.

Guys, I’m not going to sugar coat it for you: this treatment is not easy. But then again none of what I’d done for healing has been. Seeing improvements and feeling genuine hope is most certainly worth sticking with it.

With all that said, I feel so happy to share that I believe I’m in the process of healing. And while I believe in God, I’m going to keep my feelings on this experience ultra-real for you: this is not something that I’ve seen sprinkled down magically into my life. 

I’ve fought for this. For years.

I’ve committed myself to countless supportive supplements, doctor’s appointments, injections, blood draws, detox, nourishing myself, gripping onto my pebbles of hope, so-much-waiting and now I continue to reach for healing with this program. (And I continue to maintain my supplement protocol under my current doctor’s care while on the program).

So I’ll leave you with this one-month update and hope that this program may also help some of you sweet struggling ones on your own healing path. To reclaim your own health. To heal your brain’s limbic system. And begin to see yourself able to dream again… of living a healthy life, of travel, and of pursuing the things you’ve been waiting for.

Have you heard of DNRS before? Or tried it? Have questions you want me to answer in another post? Drop your thoughts below in the comments! I’d love to hear from you. 🙂

As a heads up: I’ll be largely taking a break from my Facebook page indefinitely, so if you want to stay in touch be sure to sign up for my email list. Or connect with me on Instagram!

 

*Disclosure: This post contains affiliate links. That means that if you purchase through one of these links, I may receive a small commission (at no extra cost to you). Thanks for supporting this blog and my health!

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Chronic Illness has a way of turning every day tasks upside down. I've set out on a mission to find items that will help make my life, and even pain management, at least a bit easier. Click to read more about my top 5 favorite gadgets for making the day to day of illness more manageable.

5 Useful Gadgets That Actually Make A Difference For Me

 

*This post contains affiliate links. Your purchases through these links help keep this blog running, so thank you!*

Chronic illness has single-handedly turned my health and day-to-day into a jigsaw puzzle. From navigating all my symptoms to pain management, life looks much different for me these last few years.

Normal things that I used to never think twice about, I have to plan for (or around) in order to make them possible. A myriad of other adjustments have had to happen.

I subconsciously (and sometimes vocally…color me weird) ask myself questions that I never did before. “Can I load the dishwasher today?” “How much will my body have to pay for taking a shower right now…can I still make dinner after?”

Some symptoms are harder to manage than others. Managing pain can often feel like playing hide and seek with a ghost. Fatigue is another beast that’s really hard to wrangle.

But for some of my symptoms, I’ve found tools – aids, if you will – that make my life just a bit easier. And that little bit means a whole lot to this girl! From saving me effort to supporting me (literally), these have become my must-haves for navigating my day-to-day. All while living with a list of diagnoses I’m working hard to heal.

Update: I’ve actually been able to stop using some of these wonderful aides after starting a program called DNRS that has helped me begin to heal! You can catch up here.

Slim-Fit Earplugs

Do you suffer from sound sensitivity? These slim fit earplugs have been a godsend for me! Super soft and comfortable on sensitive skin, too. Click to read more about these and other handy gadgets I use to help me navigate chronic pain and symptoms!

One of my top 5 most debilitating symptoms might surprise the healthy, but for those who live with sensitivities YOU FEEL ME. I’m not talking about emotional sensitivities, but sensory. I’m highly sensitive to noises, some triggering me more than others.

The simple sound of plastic crumpling, glasses tinking, or the faucet running, for instance feels like someone is taking a bristled bottle brush, adding electricity and shoving it through both ears. Yeah, it’s fun. With continued healing I’m confident this symptom will get better, but for now: earplugs are a must!

These slim-fit earplugs by Mack were recommended to me by a dear friend who uses them for the same purpose. And boy are they a godsend! They’re smaller than regular earplugs which makes them more comfortable for me. The set of 10 even comes with a travel tube so I can always have them on hand and easy to find in my bag!

Neck pillow

A couple of years ago I noticed that my head and neck pain would consistently rise in the car. Once I realized how much having neck support would help, Trev picked up a basic neck pillow for me. I was amazed at the difference it made!

As with anything I’ve purchased to help me manage my day-to-day, this doesn’t remove my pain, but it makes riding in the car more manageable. Even short rides used to spike my pain more than they do now that I have that bit of support.

I actually attach my neck pillow to our headrest in the passenger seat by turning it backwards and “hugging” the top portion. Not all seats will allow this, but thankfully the design of ours does. It feels more comfortable to me that way.

Walking Cane

Healing with a chronic illness looks different for every person and every illness. But through the process of healing and treating, we can find ways to offer support and relief to our overwhelmed bodies. Click here to check out my top 5 tools that have made a difference for me!

 

If you follow me here or on social media you may already know this, but I like to name things. My oxygen concentrator is formally known as O2D2 (I grew up watching Star Wars with my siblings, can you tell?). So I couldn’t help myself to name my cane Hugo. It was easy since his tag said so.

My husband suggested I get one that had more than one pod on the bottom for extra stability since my balance varies from day to day. And, as he would smile and tell you – I wasn’t thrilled with that idea. Oh vanity. As if four prongs somehow makes my cane more noticeable. 😉

I found this one and thought it was a perfect fit. And after using it for over six months now I can say I’m so happy I went for the quadpod version. It gets a good grip on the surface and the handle has enough traction that your hand is not likely to slip. I even used it in a snow-packed icy parking lot recently, while also being supported by Trev on the other side and it worked really well supporting my weak side.

Pill Organizer

This is, by far, the BEST pill organizer out there. Each day's doses are in individual containers which makes it easy to grab and go to doctor's appointments, meals out, and a day or two of travel. Soft silicone lids make for easy opening on arthritic hands. Click to read more about this and 4 other handy gadgets that have actually helped me LIVE, even if in small ways, in spite of chronic illness.

Okay, I’ve been raving about this since I bought it so I HAD to include it here. I saw someone share the link for it in one of my Lyme support groups and I loved it at first sight. I’m a romantic, after all.

Why was I willing to drop $35 for a pill organizer, you ask? Because I was confident it would make my pill routine easier. From accidental missed doses, to opening pill bottles every day with sensitive hands, to packing meds for travel – I saw this as a huge help. And it has been just that.

Its soft silicone lids make it ultra easy for opening and the ‘x’ opening easy for sliding in each day’s supplements. My hands are so much happier! Not to mention individual containers make for easy access when you have a meal you’re eating out or a day or two of travel. Since I’ve already sorted out the week’s doses, it’s just grab and go! This had made for less occurrences of late or missed doses which is always a positive.

Motion Sickness Bands

For a year and a half, nausea was a frequent – if not constant – companion to me on this healing road. I’ve always had motion sickness, but this was different. And it grew worse when coupled with driving.

I always ride in the front seat and I’m pretty cautious about anyone else driving besides Trev because of how sensitive my bod is. He’s the only one who knows just how fast things can turn for me.

Motion sickness bands like these made by Sea Band have actually helped this for me. It took me a bit to figure out the right spot for the pressure point, but once I did I noticed a difference. You do need to put them on at the start of the car ride, I’ve learned – and adjust them if you’re not feeling the benefit.

Be gentle with yourself.

In the chronic life there are many things we can’t change immediately. Healing that doesn’t come overnight. But if we can take even a bit of the burden off by making a few aspects lighter, why not?!

You’ve just heard my top 5 current faves for navigating my day-to-day symptoms so now I want to hear yours! What is your favorite(s) pain/symptom/make life easier gadget?? Let me know in the comments!

Have you snagged your copy of the FIVE gifts to give yourself when going through a hard time? Be sure to download yours here.

These 5 gadgets were my go-tos in moments I needed them most. From pain management to coping with symptoms, these tools were so helpful to me! Click to read the full list.

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Are you struggling with chronic illness and disconnected from the idea of New Year's resolutions? I feel ya. This year I'm embracing a word for the year and the word that came to mind first threw me for a loop!

My Word for 2017: From Surprise to Embrace

 

New Year’s resolutions used to be a stress inducer for me. Each year I’d come up with some grand goal of doing xyz and come January 12th I’d be so far off track it felt like there was no point.

In sickness I’ve tried a resolution or two. One year it was to hand-write a letter each month to send to a friend. I think I made it two months? And then, YOU GUESSED IT. No more letters. Last year my goal was to focus more on the blog…and that I DID do. So all is not lost.

But you know the hardest thing about the idea of New Year’s resolutions in sickness? We never know what to expect from one day to the next. I may be able to put in a total of three hours of blog/business work one day and be in bed unable to move for the next three.

So resolutions either have to be highly qualified and realistic for me or they have to be ditched altogether.

As I began to think about 2017 I decided I wanted to land on a word for the year. I thought it could either be an intention or something I wanted to embrace, or even just a word that resonates deeply.

The word that came to mind almost immediately stunned me. And that word was HOPE.

Why the stun, you ask? Well, it’s because I have a hard time using that word if I’m honest.

It’s a hard word to wrestle with when you feel as if you’ve been beaten down year after year by disease for the last 3.5. When it seems there’s no end in sight. Or in the moments when you’re literally just trying to breathe. (Thank you, Lyme & mold illness).

Hope can feel elusive when you’re held under the heavy weight of suffering. And when it’s portrayed by others as a feel-good-feeling or that it’s something you “just” have to choose? It can feel like an even more distant idea.

But hope is more than a choice.

And it’s very essence stretches beyond a happy dose of the feel-goods.

It’s more than a choice because sometimes we can know we want something, need it even, and reach for it…but not be able to grab hold of it.

On any day of the week I could need a heavy item pulled out of my cabinet. But in my current state of health I couldn’t safely make it happen. Between my POTS symptoms and lack of strength I wouldn’t be able to lift the item, let alone bring it down (or up) to my level.

So Trevin gets it for me. He carries the weight so I have access to what I need for the day.

Sometimes it’s the same with hope. We may barely have the strength to say the word out loud, let alone FEEL hopeful. And there are times our spirit is so weak that we need someone else to hold onto hope for us. To stand in the wet and cold with us, to support us as we stand, or sit, or crawl through the brokenness.

To hold onto the light of hope for us in the moments that we can’t.

So this year, just as years past, I will hold onto whatever fragments of hope I can manage. I will endeavor to give myself grace when I feel doubt or fear and I’ll continue to pursue healing in all its forms.

I’ll make an effort to regularly define what hope means to me. And let go – as many times as I need to – of impossible standards of what hope should look like in struggle.

I also want to hold hope for you.

That this year will be one that brings comfort for your weary soul. I want to hope for you that the thing you’re waiting for will begin to realize.

Through my writing, sharing, listening, living – I want to be a hope holder. A shoulder to lean on. To shed light in the dark corners of heartache, suffering and pain.

I’ll be here in your corner. Reminding you that someone out there is holding hope for you. For healing. Restoration. A source of income. Community. Family. Fulfilled dreams.

And the beauty of holding hope for others? It teaches us. Stretches us. And it means something deep, both to us and to the person we’re hoping for.

It reminds us we’re not alone. And that we’re in this thing called life together.

And that truth, in itself, is full of hope.

Want to join me with your own word for 2017? Comment below or join the discussion over on Facebook today! I’d love to hear from you.

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Susan's novel, The Last Letter, is a story for the brave souls fighting Lyme disease. But it's also for their families - to gain understanding and insight into the struggles of their loved one.

Meet the Author: Susan Pogorzelski & The Last Letter

A few weeks back I had an email drop in my inbox from the lovely Susan Pogorzelksi, a Lyme author who released her book, The Last Letter back in September. She offered to send me a copy of her book and I am so happy to now share the love with another Lymie!

I asked if she would join me here on the blog to share a bit of herself and the passion behind her book and she happily agreed to have me interview her. Having her here with us today is such a treat and I hope you enjoy connecting with her story and passion. She is such a light for the Lyme community!

Meet Susan

I invited Susan onto the blog to share more about her book, The Last Letter, a fictional reflection of her personal journey fighting Lyme disease.

Thanks so much for joining us on the blog today, Susan!

Thanks for having me, Kami! It’s a pleasure!

When did you first start writing?

When I was in kindergarten, my best friend and I would recite stories to our teacher, who would then write them down for us. We’d illustrate them with rudimentary crayon drawings and make covers out of cardboard and contact paper, punching holes in the sides to bind them with metal rings. These were our first books.

I think I knew then that there was something special about books–about the stories within the pages and the magic they create. I was fascinated by the fact that I could play a part in that–actually, I still am! It’s nice to know that feeling has always been with me.

Have you always wanted to be a writer?

Writing wasn’t my professional goal until I think I was in middle school–when I learned that was something people could choose. It was just always something I did, a part of who I was.

When I was younger, I was a voracious reader, and my stories emulated what I was reading at the time: I wrote mysteries after consuming the books in the Fear Street series. I wrote a book about a group of friends who were runaways after reading survivalist/dystopian books by Scott O’Dell and Lois Lowry (stories which will never see the light of day!).

But then when I was around twelve or thirteen, I discovered A Tree Grows in Brooklyn and coming-of-age literature, and I was hooked. I learned that I could use writing as an outlet to figure out what I was thinking and feeling–to figure out life–and stories became that much more powerful. I think that’s when I decided I wanted to be an author. I wanted to be able to share a part of myself in that way.

I’ve started reading the copy of The Last Letter you sent me and am finding it such an intriguing approach to sharing about Lyme. Can you describe the book to readers?

Written as a series of letters between 1999 and 2003, The Last Letter is a coming-of-age story about Lia Lenelli, a teenage girl struggling to shape her own identity while a chronic illness threatens to tear her world apart. While the book is primarily a work of fiction, it’s a semi-autobiographical account of my own struggle to find a diagnosis and subsequent recovery from Lyme Disease, particularly the emotional toll that having such an illness can take.

From Susan: "I realized that fiction could be the perfect conduit to help those with Lyme feel like they’re not alone while bringing awareness to an illness that is so easily (and dangerously) dismissed."

What made you decide to write the book as fiction as opposed to an autobiography of your Lyme journey?

I’ve been blogging and journaling about my own journey through Lyme since I was first diagnosed in 2012 (and through fifteen years of misdiagnosis before that) but never had any intentions of publishing a book on the subject, despite prompts from friends and family to share my story–a story I know thousands of people can relate to.

Whenever I did consider it, I couldn’t bring myself to write–I felt like I’d already said what I wanted to say and what was left, I didn’t have words for. But then in 2014, right after I reached remission, I wrote the beginning of what would be the first draft of The Last Letter: a letter from a teenager named Amelia to a stranger, to be placed in a time capsule as a reminder that she had once existed. I didn’t know where it was leading, and so I put it aside.

The idea of leaving something behind as a reminder that I had once lived–the idea of legacy, identity, and survival–began to haunt me, especially considering what I’d been through with Lyme. And so, as I began to write more, I realized that I could tell my story–our story–in a way that provided some emotional relief while really exploring these themes.

As I’ve been reading the book I’ve thought of how hard it can be for us to revisit moments of our past when we are fighting illness. Whether it’s a moment of pain or even a memory of not being sick, they can be hard to relive. Did you struggle with this when writing this story?

This is so true and part of why it was necessary for me to craft my story around a fictional narrative. I think life has a way of anesthetizing our experiences–once you’re healthy, you forget what the worst of it was like, how bad it really was when you were sick.

When I went into remission, I thought I’d put Lyme behind me, but then in early 2015, I had a severe relapse from which I’m still recovering. I knew what I’d been through before, but I was so eager to move on with my life, I’d forgotten how bad it was until I found myself back there again.

Writing this book through my relapse made me not only remember that pain, but it forced me to confront it. Fiction provided enough of a distance that I could do so safely.

I read my book the other day for the first time since the release. I wanted to read it objectively–not as the writer or as an editor with a critical eye, but as a reader. I’ll admit, it was hard.

Because now that time has passed and I’m slowly getting better, I’m again forgetting all those days when I couldn’t lift my head from the pillow, or when I writhed from the pain in my legs, or how I fought for every word when I was writing the book because my neurological issues were so bad, I had only brief pockets of clarity before the fog took over.

Because I was writing the book as fiction, I could lie to myself and pretend it was Amelia’s story. Now I’m reminded that it was mine–that it’s all of ours in some way or another–because everything Lia experiences both symptomatically and emotionally is what I’ve experienced, too.

That’s always the hardest part: knowing how much truth there is even in fiction. But there’s also a sense of pride there. Because reliving those experiences, I’m reminded of what I survived–that I did it once, and I can do it again. It’s what keeps pushing me forward in recovery.

What do you hope readers experience when reading your book?

Part of the reason I chose fiction for this story is because fiction is a powerful form of storytelling. When you’re reading a memoir, the thought that this is someone else’s story is still lingering in the back of your mind.

But when you read fiction, you become the characters–you think, feel, and experience what they do. I realized that fiction could be the perfect conduit to help those with Lyme feel like they’re not alone while bringing awareness to an illness that is so easily (and dangerously) dismissed.

That’s all I could ever want for this book–for it to help someone. For someone to recognize themselves in it and know they’re not alone in their suffering–that there are people who are fighting along with them.

And for those who don’t have Lyme, I hope it brings to light what those with Lyme endure on a daily basis and why we need support, acceptance, and unconditional love more than ever.

What’s next for you? Are there dreams you have for 2017?

It’s been a long journey through recovery, so I’m hoping to keep getting better so I can be in a position where I can be of service to people. On the Lyme front, I’m hoping to do a lot more as far as advocacy and building awareness, especially when it comes to healing emotionally from this illness.

I’m not sure what that looks like yet, but I’m happy to be playing a small part by contributing my writing on The Mighty and the Global Lyme Alliance blog. I’m also working on my next novel, which I hope to release next fall.

Is there anything else you’d like the readers to know?

If I could speak directly: I want you to know I think you’re some of the bravest, most inspiring people I’ve ever met. This disease is ruthless, and it often feels lonely and isolating and like no one understands. To be able to face that takes so much strength and so much courage, and I hope more than anything that you’re able to recognize that strength and courage in yourself.

This Lyme community is something truly special. When you cry, someone is there to dry your tears. When you fall, others lift you up. When you feel weak, we’ll remind you that we’re fighting with you. Please don’t ever forget that you have people on your side and that you’re so much stronger than this disease makes you feel. Stay strong. Be brave.

And to you, Kami: Thank you for being such a strong voice in the Lyme community! It’s been a pleasure getting to know you, and I’m grateful for this opportunity to share my book.


A big thank you to Susan for joining me for this interview. And for being a voice of hope and compassion to Lyme sufferers around the globe. Your story is one that so many can relate to and find comfort in the reminder they’re not alone.

You can find Susan’s Lyme book, The Last Letter on Amazon and other online book retailers. Or you can purchase signed paperback copies on Susan’s website

To connect with Susan, look for her on the following social media outlets:

Twitter | Instagram | and Facebook at her page Lost in the Lymelight, a community focused on healing from the emotional impacts of Lyme disease.

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