Home » Blog » Lyme

Tag: Lyme

After years of living a limited life with chronic illness, Kacie began to see a new chapter unfold. Tune in to hear how her story turned to hope and healing!

Healing Fibromyalgia & Lyme with Kacie Fleming

Chronic illness has this way of sneaking up on you, doesn’t it? Most of us could admit that the signs were there. Maybe they’ve even been there awhile.

But we keep covering the flashing lights or silencing the alarms.

We push through. We get things done in spite of the pain. Or we tell ourselves “this will pass.”

Until we can’t.

Until the symptoms become just enough to start calling some of the shots. Instead of pushing through, we find ourselves weighing out the costs of simple actions. Things we used to do without giving them a second thought.

Kacie’s story is all to relatable. And it begins with an all-too-familiar thought of “something’s just not right.”

From one diagnosis to another, as her list grew and pills were prescribed, she found herself in another world.

The land of chronic illness. A place where resting after a shower, canceling plans, and eating a limited diet was the new norm.

But her story didn’t end there. She pursued other opinions, holistic treatment, and opened her mind to a completely different approach to healing.

Her story is now one that is full of healing and hope for both herself and others – and she’s sharing her journey of how it’s all been unfolding today on the podcast!

She and I have both embarked on the DNRS program, which we’ll also be talking about during our chat. You won’t want to miss it if you’ve been considering learning more about neuroplasticity!

Listen in….

To listen to today’s episode, simply hit play below or subscribe to the show on iTunes, Stitcher, & Google Play!


Connect with Kacie!

Visit her shops: Katya Valera Jewelry | Streetlights at Midnight

Connect on social media: Facebook | Instagram

Is it possible to heal chronic illness naturally? After receiving multiple diagnoses that could have meant living a life defined by illness, Kacie is sharing her story of how hope and healing have been unfolding in her life through treatments often overlooked (or unheard of). Click to listen!Healing chronic illness naturally with Kacie Fleming @kacie_kvFrom diagnoses to hope: Kacie's story of finding healing through methods most doctors might ignore may bring renewed hope to your own story. Click to listen in!

Check out these other posts...

Learn more about neuroplasticity and the way it can help you reclaim your health. I'm sharing a few of the tools I've been learning to implement and how they can make an impact for you, too! Click to listen in!

The Wellness Crossing: NEW Podcast launch!

I’ve been planning and dreaming about launching a new podcast for a couple of months now. And today, I’m excited to say: it’s happening. Or rather, it’s HAPPENED!

Introducing: The Wellness Crossing Podcast.

(Cue radio announcer voice: now available on iTunes, Stitcher, & Google Play!)

This podcast is designed to be a space where we can talk all things healing. A space to feel empowered and inspired to be our best advocate when it comes to wellness. As well as learn about new approaches to treatment, alternative therapies, and even the role the brain and energy plays into our health.

Each week we’ll dive into a new conversation related to wellness, healing or inspiration for rising above the challenges or hangups we may be facing. And I’ll be inviting various guests on to lend their insight and tools for how they pursue and prioritize healing.

Which brings us to today and the very first episode!

So if you’ve been following along here on the blog, you may have hear about the new treatment program I’ve been following. Now, it’s not a traditional treatment, in that it’s entirely done from home. And the responsibility lies entirely on the patient to implement.

Now, most treatments have at least some, if not a large reliance on the patience doing their part. But this treatment approach puts the full control on the one doing it because it involves retraining one’s neural pathways.

Weirded out yet? Stick with me….

The techniques center around the research of neuroplasticity, which basically means that “the brain can change itself.” Each technique and daily practice that you follow is designed to help you do just that.

And I’m living proof that it does, in fact, make a difference. Because quite literally, it’s been giving me back my life after years of living with a debilitating chronic illness.

So in this first episode of my new podcast launch, I’m sharing more about my experience with the Dynamic Neural Retraining Program (DNRS). I’m unpacking how I went from total skeptic to setting up camp in the land of Neuro Plastic City.

Healing is a journey that has been far from linear for me, but as I’ve seen huge shifts begin to unfold in my health I feel compelled to share what I’m learning. And it’s my hope that it helps support you on your own exploration of how to tap into the brain’s ability to heal.

So listen in to hear the whole story and learn how YOU can start to learn and implement neuroplasticity tools into your everyday, too!


Resources to check out:

(The following list includes affiliate links.)

Books by:

Norman Doidge
Joe Dispenza
Bruce Lipton

Neuroplasticity Tools:
Dynamic Neural Retraining System / DNRS
Brain Vibes – a FREE resource on my blog!

Tune in to the podcast on iTunes, Stitcher, & Google Play!

Have you ever tried incorporating neuroplasticity techniques into your routine?

Learn what it means to "retrain the brain" and how it's been helping me heal from chronic illness! Listen in as I share some of the tools I personally have been using to reclaim my health and how you can begin to implement them, too. Click to listen in!Implementing tools based in neuroplasticity has quite literally been changing my life. After years of living with chronic illness, I've been reclaiming my health and living a fuller life! Join me on the podcast as I share more of my journey and some resources for you to explore. Click here to listen.

Check out these other posts...

Marriage is hard work to begin with, let alone throwing in a curve ball like chronic illness. Join Kami & Trevin Lingren as they discuss the challenges Lyme disease has brought into marriage and hear answers to some of the Living Grace readers' questions.

Podcast Episode: Navigating Marriage in Chronic Illness

Over the summer I ran a survey here on the blog, asking you readers what sort of things you were hoping to see. Topics you were interested in, ways to connect more here on the blog and social media and a variety of other ideas. Your responses were so helpful in shaping this blog space and today I’m introducing the Grit & Grace Podcast!

In today’s first episode, I’m integrating some of the questions from my Q/A corner on the topic of marriage in chronic illness. I’ve received a bunch of questions over the last few months so I envision this being a series we revisit to work through some of the common themes.

Marriage in chronic illness is tough. And there’s no way to sugarcoat it, it just IS.

So I’ve invited my husband on the podcast today to offer his unique perspective as the spouse of someone fighting chronic illness. Because, if you’ve been fighting illness for more than a minute you KNOW that this battle affects them, too.

So pour yourself a warm fall drink (or an icy beverage if you’re still in summer’s unending heat) and hit play to join our conversation!

Episode 1: Navigating Marriage in Chronic Illness

Listen in as husband and wife discuss some of the challenges that come with marriage in chronic illness, ways they are learning to navigate the grit of this life, and answers to some of readers' questions.

Resources mentioned in the podcast:
(Disclosure: This is an affiliate link, which means I may receive a portion of your sale at no extra cost to you).

How We Love Book by Milan & Kay Yerkovich

To email Trevin: trevin@livinggraceblog.com

We’d love to continue the conversation with you in the comments below, whether you’re in a relationship or wishing you were. Your story matters.

Want to be sure you don’t miss the next episode of Grit & Grace? Sign up here.

Check out these other posts...

My Lyme Story: Part One

This is the first installment of my Lyme story, sharing how everything shifted for me three years ago. Though my symptoms, ER visits, and unexplained infections all began as early as age 7 for me, it wasn’t until later on that I began to pursue answers.

I had a severe episode in 2010 that led to a series of tests and my first diagnosis of relapsing-remitting multiple sclerosis. From 2010 to 2013 I was able to lead close to a normal life with my abilities. This is the story of the weekend that all changed. 

The first half of 2013 was incredibly busy for us. I remember feeling at the end of my rope emotionally and physically. Always fatigued, usually anxious, I wasn’t sleeping well and I’m guessing Trev felt the need to walk on eggshells around me more often than I’d wish.

I must have told him 587 times how much I wanted a break. Okay, so not 587 times, but a lot. I was struggling with the stress of increased traffic, feeling overwhelmed by our weekly commitments, and putting too much pressure on myself to do more than I could handle.

The first weekend in June I attended a two day women’s conference at our church, where Jen Hatmaker was speaking. I’ve shared my love for her here before and if you aren’t familiar with her you should at least bless yourself with getting acquainted with her humor. She is HILARIOUS and so gifted as a speaker and writer.

I soaked up so much during that conference. It was healing for me. Restful and calming.

When I returned home from the final day of the conference on that Saturday, I knew Trev had planned a special date for us. I had it in my mind that he’d planned a picnic at a park nearby. Or maybe a beach visit. Either of which I would have been thrilled with.

But instead, this was his response:

“We’re going to leave in 20 min and you need to pack an overnight bag. And I’m not telling you where we’re going yet!”

[Insert a happy Kami: huge smile, giddy with excitement, and frantically packing the most efficiently packed 20-min-bag of my entire. life.]

It was the best last-minute surprise ever. I don’t think my smile left my face the whole drive to Manhattan Beach.

Little did I know: this would be my last taste of “normal” for years to come.

He took me to the marina first thing, where we sat in a German restaurant open to the marina and munched on an appetizer. Afterward, we checked into our hotel and relaxed until it was time to make our way to dinner reservations at a local Italian restaurant. The food was so good (gluten-filled pasta, you’re calling my name) and our waiter was a riot – loud, expressive and he blew a kiss at us almost every time he left our table.

Before we headed back home on Sunday, we went to the pier for a short walk. Early on I began to experience an influx of dizziness so we took a quick picture and headed back to the car. At the time I attributed it to my diagnosis of multiple sclerosis…I now know there was more going on than I could have imagined.

The last weekend of normal in my chronic illness journey...

Knowing we would need to eat regardless of how I felt, we headed to a Lingren family Mexican food favorite in LA for lunch. As we sat eating, I began to feel increasingly worse between dizziness, a migraine setting in and a growing tingling and weakness in my limbs. It was all coming on so suddenly and fierce.

We decided it was best to head home so I could rest. I was beginning to feel concerned that I was experiencing a relapse. In relapsing-remitting multiple sclerosis, the patient typically experiences long periods of higher function with scattered “episodes” of heightened symptoms or a full blown crash. Waking up in awful shape the next morning was the realization of my fears.

I spent the next two weeks glued to the couch for the majority of my days.

I was too dizzy to stand. In too much pain to function. Unable to engage in community. All of the layers of struggle and seemingly overnight change was brutal. 

At the end of those two weeks I began to feel like I might be able to return to work. And so I did for a few scattered days before my body inevitably crashed again. It was difficult to accept the very clear message that work was officially out of the question for me.

Later that fall I ended up in the hospital needing a blood transfusion. After mysteriously losing far too much blood, my hemoglobin was dangerously low and my symptoms were going haywire. After the transfusion and an overnight stay in the hospital we saw my hemoglobin levels rise to normal levels. But I continued to struggle heavily for the remainder of 2013.

I found myself lost in a cycle of “we don’t know what to do with you” among the neurologists and doctors I saw. It was always: more medications, more advice to “eat lots of healthy grains and exercise” (never mind the fact I would barely hobble into each appointment), and a list of test I needed to take.

I was declining and fearful.

I had a tunnel vision view fixed on MS and a knowledge of its tendency to transition into a progressive state, which left me in a puddle of worry.

Would I end up in a wheelchair permanently? Would I be able to have children? How much disappointment could I actually take? Or my husband, for that matter?

In many ways it felt as if we were drowning. We were reaching for hope, but our grip often wasn’t strong enough to grab hold. Improvement didn’t come as the neurologists hoped, or as we continually prayed for. Any lessening of symptoms felt few and far between and never would last long.

Every year of this difficult journey has been hard, and each in it’s own unique way. That first year was the year of overwhelming unknown. A roller coaster of failed hope mixed with the ups and downs of my body’s varying ability to disability in those first few months.

But little did we know, we didn’t even have the right answer. My body had been fighting a battle that none of these doctors considered and we wouldn’t pursue until the following year. The year we would learn:

I have chronic Lyme disease.

I’m sharing this series for the purpose of awareness and to hopefully plant a seed for someone else who may have also been misdiagnosed. However, I am not a doctor nor do I claim to be one. I simply believe we are our best health advocates. If you are unsure of your diagnosis: Do your research. Ask the hard questions. Advocate for your health and answers. 


Want to know when the next installments get posted? Sign up for my email list to receive a notification in your inbox the day they go live!

Check out these other posts...